sally williams

I am participating in the Trepostinil trial.  I am in week 10 of 1 year.  Pretty easy, inhailing the drug or placebo 4 times a day.  Not too many side effects, occasional headache, dizziness.  This is my second trial.  I believe that we need to do whatever we can to get rid of this dread disease.  I only participate in the ones that allow me to st…[Read more]

I have been on Esbriet for almost a year. I think the key is a really gradual increase in the number of pills per day…it took me over 2 months to get up to the full day dosage.  Good luck.

Allen, I believe that since you live at a fairly high elevation and a river cruise will be at sea level, you should be fine without supplemental oxygen.  I live at a slightly lower elevation and always feel fantastic at sea level.  I say don’t worry about the flight.  I fly fine without oxygen, although my longest flight has only been 4 hour…[Read more]

Count them out in the morning and place them in 3 small containers…I have 3 very small saucers that I use, easy to see right away if I need to take the next dosage

1. In a Phase III Clinical Trial with patients with Pulmonary Fibrosis, there was a statistically and clinically significant improvement in all lung functions, compared to baseline, including an increase in FEV-1, SaO, FVC, FEV-1/FVC ratios (from 52% to 86%) and a reduction in coughing and fatigue.

Very exciting results, I believe they are now…[Read more]

Rob, is Dr Schwartz at National Jewish? I see a Michael D. Schwartz listed..same man?

I do not suffer from that, bu I do Pilates and maybe that stretching helps. Good luck, not walking isn’t good.

To Steven and Christie, Anecdotal information.  My brother had a kidney transplant due to a hereditary disease.  (Polycystic kidney). After 12 years there has been no sign of cysts