That sound good l have found Silver Shield gell works great it softens stuff in nose makes it easy to remove

Thank you I have found that a product called Neospoin.. it works greatly a few days in nose couple times s day works thank you

Sounds familiar Terry except I do have my family to talk to. Im 74 years old. I have had IPf for about 4 years. am on oxygen 24-7 I went from 20L oxygen to now 7L. If I do anything I become short of breath. I haven’t been out of my house in year and a half. My doctors visits are all virtual. I cant even take a shower now with out… Read more

I know how your mom feels. I am 73 year old self made man. I was very active and some what prideful in a good way man I came down with IPF like 4 years ago the worst day of my life was the day I was diagnosed. Embarrassed Having to be helped by my family sometimes I feel so helpless on O2 24-7 Not active hardly at all even with Oxygen. The… Read more

I have had neck pain for several months now. I use a lotion called Tei-Fu by Natures Sunshine it does help some. My pain comes and goes I dont know if IPF has anything to do with it or not. I have had IPF for 3-4 years and the pain started a few month ago.  I talked to my Dr  and they dont know. So I am dealing with it as best as I can Mine is… Read more

I am on oxygen 24-7 I have a home concentrator and a portable concentrator both work very well. How ever I do get brethless when I get active it will go from 98 at rest to 75-85 when active. So I dont get the excursive I need.

I have been diagnosed IPF 3 years ago. Using oxygen for about 2 years I’m on 7-24 now set at 5 I’m at 95–98 resting but as soon as I get up and walk 5ft it drops to 65-75  I have. Difficulty moving from room to room. I am looking into getting a Motorized Chair so I can get around. I know I don’t have to much time left I am making of it the… Read more

Sorry to hear about your mom . I am dealing with the oxygen too I am on it 24-7 even then I get breathless. Your Doc will need to prescribe oxygen for you they have suppliers that they go through. Hope that helps

No not really My last appointments have been virtual. However I did go in for a CT scan but I could not do it I cant lay flat my head needs to be elevated and my arms over my head, and also lay on my stomach I cant do any of those things.  As they started to put me in the tube I said no cant do this pull me out.. So I did not get the CT so Im… Read more

I have been on Oxygen 24-7 for several months now. While I am at rest my level is 85-98 but if I get up to do anything it drops between 78-85 while on oxygen. I am considering getting a Mobility scooter to help me get around the house from room to room. Anyone have experience with the scooters? Than you Sam G

 

Thank you for your input about WEI it is very expensive and from what I have read I don’t think it will help me much. I am going on my 5th year with this thing IPF it has affected my life allot but I am still doing pretty good am on oxygen when I  some what  active life. not like before. I am enjoying my family and my 9 year old and 3 month old… Read more

Has anyone had experience with the WEI Institute?  From my research it sounds promising but it is expensive.  Any information that you may share would be helpful.  I am considering trying the program. Thank you Sam Gilmore

What a great topic. I have been on oxygen for about year have had IPF for about 4 years. I use oxygen when I am active but when I am resting I do not use it all the time only when I feel a need for or get panicky which happens. I will use it to bring my lungs back to the 90s. I do think its important to try an strengthen the lungs as much as… Read more

I have not read any thing new about Wei but would like to know more Can anybody share

I have a portable oxygen concentrator called a OxyGo Next It’s lightweight and fits in a bag to carry around very convenient weighs 4.7 pounds.  Through my insurance I pay 37.00 a month and that includes the Home concentrator also.  Hope this helps.

Thank you I do better in cooler temps.  When I first came down the IPF the cold really bothered  me but know the warmer temps  do.  Texas is good place for us, most of the time. Y’all take care.

I live in Texas so we don’t get below 45 degrees hardly ever. But I feel better when its cold. But here we are averaging 70-75 so far early Nov and thats ok better than 100+ like we get in the summer ..

I have had IPF for 4 years at first I had no quality of life.  After talking to my Dr. He put me on Prednisone been on it for about two years at 10mg what a difference I know there are side effects but to me the benefits out way the side effects. I also know that there is no cure at this time.  Just take a day at a time.  You will have good… Read more

I know how you feel when I had no energy to even get out of bed no quality life. I was first diagnosed with IPF 4 years ago I am 74 years old . My first doctor was not very encouraging my wife and I left his office feeling hopeless and afraid I felt like a was given a death sentence. After a few months I decided to find another doctor… Read more

My United Healthcare insurance covers Oxygen it cost me about 37 a month for a portable and a stay at home Oxygen devices.

 I have IPF for 4 years now and doing good I do use Oxygen as needed not all the time. But yes it does help when I become tired or short of breath. Your Doctor does have to prescribe it but its not a big deal . Talk to your Doctor.

 

I have not heard of Laser therapy is it new? Where can I get more information about it? Thank you

I do not have a tailored program I do walk and ride exercycle for about 10 – 15 min. a day Because of energy level that’s about all I can do.  So many days I do not have enough energy to do much more. I am 73 years old had IPF for 4 years but am doing pretty good just tired many times.