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Sam Gilmore

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@samgilmore

I am on my 10L concentrator I started with concentrator that is suppose to keep nose and mouth from drying out.so I tryird it out for a few days and it made my nose and mouth extremily dry. I did just the opposite from what it is suppse to go my nose was so dryrd out rediculouse. Any dode else hae this expietence View
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  • Profile picture of Sam Gilmore

    Sam Gilmore replied to the topic Help for High Oxygen User Nasal Pain in the forum Using Our Forums 1 year, 10 months ago

    That sound good l have found Silver Shield gell works great it softens stuff in nose makes it easy to remove

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    Sam Gilmore replied to the topic Help for High Oxygen User Nasal Pain in the forum Using Our Forums 1 year, 10 months ago

    Thank you I have found that a product called Neospoin.. it works greatly a few days in nose couple times s day works thank you

  • Profile picture of Sam Gilmore

    Sam Gilmore posted an update 1 year, 10 months ago

    I am on my 10L concentrator I started with concentrator that is suppose to keep nose and mouth from drying out.so I tryird it out for a few days and it made my nose and mouth extremily dry. I did just the opposite from what it is suppse to go my nose was so dryrd out rediculouse. Any dode else hae this expietence

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 10 months ago

      Hi Sam, here is a big ol’ thread talking about exactly that issue. I hope it helps!

  • Profile picture of Sam Gilmore

    Sam Gilmore replied to the topic Shortness of breath and normal oxygen reading in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago

    Sounds familiar Terry except I do have my family to talk to. Im 74 years old. I have had IPf for about 4 years. am on oxygen 24-7 I went from 20L oxygen to now 7L. If I do anything I become short of breath. I haven’t been out of my house in year and a half. My doctors visits are all virtual. I cant even take a shower now with out becoming…[Read more]

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    Sam Gilmore replied to the topic Disabled Identity Crisis & Accommodations in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago

    I know how your mom feels. I am 73 year old self made man. I was very active and some what prideful in a good way man I came down with IPF like 4 years ago the worst day of my life was the day I was diagnosed. Embarrassed Having to be helped by my family sometimes I feel so helpless on O2 24-7 Not active hardly at all even with Oxygen. The feeling…[Read more]

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    Sam Gilmore replied to the topic Severe neck and shoulder pain in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago

    I have had neck pain for several months now. I use a lotion called Tei-Fu by Natures Sunshine it does help some. My pain comes and goes I dont know if IPF has anything to do with it or not. I have had IPF for 3-4 years and the pain started a few month ago.  I talked to my Dr  and they dont know. So I am dealing with it as best as I can Mine is m…[Read more]

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    Sam Gilmore replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 2 years ago

    I am on oxygen 24-7 I have a home concentrator and a portable concentrator both work very well. How ever I do get brethless when I get active it will go from 98 at rest to 75-85 when active. So I dont get the excursive I need.

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    Sam Gilmore and Profile picture of Jim ParsonsJim Parsons are now friends 2 years ago

  • Profile picture of Sam Gilmore

    Sam Gilmore replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 2 years ago

    I have been diagnosed IPF 3 years ago. Using oxygen for about 2 years I’m on 7-24 now set at 5 I’m at 95–98 resting but as soon as I get up and walk 5ft it drops to 65-75  I have. Difficulty moving from room to room. I am looking into getting a Motorized Chair so I can get around. I know I don’t have to much time left I am making of it the best…[Read more]

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    Sam Gilmore replied to the topic No Oxygen and extremely bad breathing in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 1 month ago

    Sorry to hear about your mom . I am dealing with the oxygen too I am on it 24-7 even then I get breathless. Your Doc will need to prescribe oxygen for you they have suppliers that they go through. Hope that helps

  • Profile picture of Sam Gilmore

    Sam Gilmore replied to the topic 'Scanxiety' Among IPF Patients in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 1 month ago

    No not really My last appointments have been virtual. However I did go in for a CT scan but I could not do it I cant lay flat my head needs to be elevated and my arms over my head, and also lay on my stomach I cant do any of those things.  As they started to put me in the tube I said no cant do this pull me out.. So I did not get the CT so Im not…[Read more]

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    Sam Gilmore replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 1 month ago

    I have been on Oxygen 24-7 for several months now. While I am at rest my level is 85-98 but if I get up to do anything it drops between 78-85 while on oxygen. I am considering getting a Mobility scooter to help me get around the house from room to room. Anyone have experience with the scooters? Than you Sam G

     

  • Profile picture of Sam Gilmore

    Sam Gilmore posted an update 2 years, 1 month ago

    I have had IPF for about 2yeras I am on oxygen 24-7 my question is while on oxygen if I get up to go to next room my level goes from, 97 to 76 and I get very short winded. This just started like a month ago. My Doctor told me to go to 5 on my machine but even that does not seem to help. I think this is just a sign that my journey is about over.…[Read more]

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    Sam Gilmore replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 3 months ago

    Thank you for your input about WEI it is very expensive and from what I have read I don’t think it will help me much. I am going on my 5th year with this thing IPF it has affected my life allot but I am still doing pretty good am on oxygen when I  some what  active life. not like before. I am enjoying my family and my 9 year old and 3 month old g…[Read more]

  • Profile picture of Sam Gilmore

    Sam Gilmore started the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 3 months ago

    Has anyone had experience with the WEI Institute?  From my research it sounds promising but it is expensive.  Any information that you may share would be helpful.  I am considering trying the program. Thank you Sam Gilmore

  • Profile picture of Sam Gilmore

    Sam Gilmore posted a new activity comment 2 years, 4 months ago

    Thank you for your reply. My problem is I don’t get enough exercise. I don’t have much energy. Each day has its own challenge doesn’t it . Take care stay safe. Sam

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  • Profile picture of Sam Gilmore

    Sam Gilmore posted an update 2 years, 4 months ago

    Sleep I have been diagnosed with IPF for about 4 years now. Not doing to bad am on oxygen about 50% of the time. My question is about sleep. I do not sleep well. I to When I do go to bed its like 2:am and don’t fall a sleep until about 4am but then I will sleep some times until 5apm. Any one else have this issue?

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 4 months ago

      Hello Sam, I had problems sleeping and still do after transplant. I find if try to physically exert myself during the day I usually sleep better but it is still not a great sleep. How much sleep I get determines how my day goes. If I dint get enough I will have to nap around noon. Sorry I couldn’t be if more help. I wish there was magic potion f…[Read more]

    • Profile picture of Sam Gilmore
      Sam Gilmore replied 2 years, 4 months ago

      Thank you for your reply. My problem is I don’t get enough exercise. I don’t have much energy. Each day has its own challenge doesn’t it . Take care stay safe. Sam

  • Profile picture of Sam Gilmore

    Sam Gilmore replied to the topic Too much oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 5 months ago

    What a great topic. I have been on oxygen for about year have had IPF for about 4 years. I use oxygen when I am active but when I am resting I do not use it all the time only when I feel a need for or get panicky which happens. I will use it to bring my lungs back to the 90s. I do think its important to try an strengthen the lungs as much as I…[Read more]

  • Profile picture of Sam Gilmore

    Sam Gilmore replied to the topic results experienced after Wei Labs products usage in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 5 months ago

    I have not read any thing new about Wei but would like to know more Can anybody share

  • Profile picture of Sam Gilmore

    Sam Gilmore replied to the topic Portable Oxygen Concentators in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 6 months ago

    I have a portable oxygen concentrator called a OxyGo Next It’s lightweight and fits in a bag to carry around very convenient weighs 4.7 pounds.  Through my insurance I pay 37.00 a month and that includes the Home concentrator also.  Hope this helps.

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