Sam Gilmore

Thank you for your input about WEI it is very expensive and from what I have read I don’t think it will help me much. I am going on my 5th year with this thing IPF it has affected my life allot but I am still doing pretty good am on oxygen when I  some what  active life. not like before. I am enjoying my family and my 9 year old and 3 month old g…[Read more]

What a great topic. I have been on oxygen for about year have had IPF for about 4 years. I use oxygen when I am active but when I am resting I do not use it all the time only when I feel a need for or get panicky which happens. I will use it to bring my lungs back to the 90s. I do think its important to try an strengthen the lungs as much as I…[Read more]

I had been working full time but since IPF got worse and I could not climb stairs or talk to customers with out coughing I decided to stop work. For me it was felt defeating But I know I could no longer work. Fortunately I am at retirement age so the financial part did not hurt me but I just felt like I was of no use any longer, but with the help…[Read more]

I have not read any thing new about Wei but would like to know more Can anybody share

I have a portable oxygen concentrator called a OxyGo Next It’s lightweight and fits in a bag to carry around very convenient weighs 4.7 pounds.  Through my insurance I pay 37.00 a month and that includes the Home concentrator also.  Hope this helps.

Thank you I do better in cooler temps.  When I first came down the IPF the cold really bothered  me but know the warmer temps  do.  Texas is good place for us, most of the time. Y’all take care.

I live in Texas so we don’t get below 45 degrees hardly ever. But I feel better when its cold. But here we are averaging 70-75 so far early Nov and thats ok better than 100+ like we get in the summer ..

I have had IPF for 4 years at first I had no quality of life.  After talking to my Dr. He put me on Prednisone been on it for about two years at 10mg what a difference I know there are side effects but to me the benefits out way the side effects. I also know that there is no cure at this time.  Just take a day at a time.  You will have good da…[Read more]

I know how you feel when I had no energy to even get out of bed no quality life. I was first diagnosed with IPF 4 years ago I am 74 years old . My first doctor was not very encouraging my wife and I left his office feeling hopeless and afraid I felt like a was given a death sentence. After a few months I decided to find another doctor specializes…[Read more]

My United Healthcare insurance covers Oxygen it cost me about 37 a month for a portable and a stay at home Oxygen devices.

 I have IPF for 4 years now and doing good I do use Oxygen as needed not all the time. But yes it does help when I become tired or short of breath. Your Doctor does have to prescribe it but its not a big deal . Talk to your Doctor.

I have not heard of Laser therapy is it new? Where can I get more information about it? Thank you

I do not have a tailored program I do walk and ride exercycle for about 10 – 15 min. a day Because of energy level that’s about all I can do.  So many days I do not have enough energy to do much more. I am 73 years old had IPF for 4 years but am doing pretty good just tired many times.