Samona
@Samona
•
Joined Dec 2023 •
Active 2 weeks ago
Biography
Name | Samona Shuford |
Nickname | Samona |
Last Name | Shuford |
Year of Birth | 1970 |
Gender | Female |
Location | Tennessee |
Relationship | Patient |
Short Bio | I’m a 53 year old woman with Interstitial Pulmonary Fibrosis, I was diagnosed in 2016 and went on a regime of inhalers sprivia & breo until I got Flu A in Dec. 2022 and had an exacerbation that decreased my capacity from 80% to 49%, I’ve come up to 52% this year. Currently on oxygen -24/7 and will be starting Ofev as soon as the insurance and doc get me there…Still work full time. |
Type of Diagnosis | familial/genetic PF |
Treatment / Medical Facility | Knoxville Pulmonology & Sleep Consultants |
Current medication regimen | Prednisone, Bactrim, Azo- fixing to go on Ofev |
Lung transplantation status | considering later |
Supplemental Oxygen | yes |
Best advice for PF symptom management | I don’t have any advice really, it’s all over the place. |
Are you currently taking an anti-fibrotic medication? | yes |
If yes, which anti-fibrotic medication are you on? | Ofev |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | 7 years |
Privacy Policy and Terms of Use | I agree |