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Sandra Koenig replied to the topic Different Types of Fatigue for Patients with PF. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago
So happy you are touching on this topic. Seems like the start of Spring that everything has changed for me. The coughing jags are back and the extreme fatigue has set in. I can get 8 hours of sleep and by 1:00 in the afternoon I take a two hour nap. If I do anything physical I’m in bed for the night @9:00 p.m. I feel more comfortable laying do…[Read more]
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Sandra Koenig replied to the topic Tips to Settling Your Mind as a Patient with Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 9 months ago
For me this works. I grab my iPad and play games. Usually they are the video games such as casino reels. There is something about the repetitious reels spinning that makes me nod off. It’s mindless play and as soon as I start to feel like I’m about to nod off. I put my iPad away, turn off the light, connect to my cpap and oxygen and it’s nighty-nite.
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Sandra Koenig started the topic Started my own wreath making business. in the forum Hobbies & Projects 3 years, 10 months ago
I was diagnosed back in 2015 after a Cat scan/lung biopsy showed IPF. I already had my own jewelry making business up to that point, so after the recovery of the lung biopsy I found myself sitting in my recliner all day long doing nothing but watching tv and sleeping. As I recovered I knew my mobility would be limited so I started to make wreaths.…[Read more]
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Sandra Koenig replied to the topic Lung Flush: Ever Tried It? in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 11 months ago
Found this on Amazon. They have a lot of reviews:
LUNG FLUSH – 500ml https://www.amazon.com/dp/B00CORLP8S/ref=cm_sw_r_cp_api_7q7oBbFJVRWH9
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Sandra Koenig replied to the topic The Importance of Relationships While Living With a Chronic Illness in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 11 months ago
There are days when you want to completely shut down. My family and friends see me smiling, laughing, doing everyday normal things, and I look very well on the outside. On the days that the coughing jags are too much, I get down. There is no handbook for living with IPF nor is there one for our families and caregivers. You don’t want to burden y…[Read more]
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Sandra Koenig's profile was updated 4 years, 2 months ago
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Sandra Koenig became a registered member 4 years, 2 months ago