This is challenging for me to sign on and post but we’ll see if this time it works. I am a writer and have found writing down my experiences helps me “see” how I really feel about things and not how I think I am supposed to feel. When I first began to use oxygen full time, I was embarrassed to have to travel with tank and tubes but soon realized that nobody but me cared! People were just glad that I could still be part of things where we lived. That was four years ago. IPF is challenging but I still think it beats a lot of other diseases that people deal with. I am 74 and am unwilling to consider a lung transplant given how few lungs are available. I would want them to go to younger people than me as much as I would like to extend my life by years. It amazes me how often people tell me how inspiring I am to them for no reason other doing all I can to enjoy everything possible in the days I have. Puzzles me but if this helps others, so be it. I appreciate all the info exchanged oaths web site. Thank you all.
Hello Sandy, thank you for commenting. Everything you do everyday is inspiring Sandy. This is a terrible disease and you have a fabulous attitude. Keep doing what you do. Enjoy your days and keep as active as your body will allow. I’m glad you figured out the writing for the page but if you have trouble again you can always ask Charlene or myself. Best wishes, Mark.
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