• Sarv Punj posted an update 1 year, 5 months ago

    @charlene-marshall
    Hello Charlene,
    I have been going through various issues relating to IPF but right now I am getting concerned with alarming issue of Pulmonary Hypertension as a sequel to IPF. As you know, my wife is a patient of IPF for the last about 8yrs. She was first hospitalised in Feb this year for 10 days. On return from hospital we notice that her BP levels had dropped considerably whereas she was quite hypertensive before that and on Amlodipin 20 mg OD. She is now off amlodipin and her BP remains in the range of 100/60 plus minus. Suddenly, she had another episode of feeling very low and exhausted, her heart rate going high to 120 bpm and oxygen requirement increased from 5-6 litres per minute to 10 litres per minute and had low grade fever too. Doctor advised some blood tests including COVID . While COVID was negative, she was found to have acute UTI. We moved her to hospital yesterday for management of UTI , and they started on suitable antibiotic I V as indicated by urine culture. She is slowly getting stable but her heart rate remains elevated . They did fresh ECHO which reveals high PA pressure which is secondary to IPF. General understanding is that is difficult to treat when the patient has IPF. I am feeling rather worried and upset and I just want to know if anybody is aware of the management of PA when the patient is suffering from IPF too.

    Sarv

    • Hi @sarvpunj

      Thanks so much for writing and my apologies for the delay in replying. Unfortunately, secondary development of Pulmonary Arterial Hypertension (PAH) is not that uncommon for patients with IPF. The lungs work really hard in patients with a lung disease, sometimes overworking/putting pressure on the heart. As I’ve mentioned previously, I’m not a physician so I cannot speak to the management of PAH but I do know some patients on this forum have both (I have early signs of PAH), you can read about their experiences here: https://pulmonaryfibrosisnews.com/forums/forums/topic/the-relationship-between-pah-pulmonary-fibrosis/

      I’m so sorry to hear of your wife’s episodes, that must be so tough and I hope the UTI is getting better. Very tough to hear! I’m glad the COVID swab was negative – will you have a follow up with her physician? I think voicing your concerns and upset around this is important, and then talking to him/her about the PAH concern as well. Hopefully this is an option for you.

      Hang in there,
      Charlene.

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