Pulmonary Fibrosis News Forums | Sarv Punj | Activity https://pulmonaryfibrosisnews.com/forums/members/sarvpunj/activity/ Activity feed for Sarv Punj. Tue, 28 Apr 2026 14:08:11 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 8d9216dc46fba1a184948042c628fd44 Sarv Punj replied to the discussion Oxygen in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-3/#post-24960 Tue, 14 Jul 2020 16:37:38 -0500 Reply to Oxygen

I have gone through some of the correspondence on the need for Oxygen. I would like to share my experience as I am closely monitoring the condition of my wife. It’s true,Oxygen requirement for individuals suffering from IPF or other COPD disease is unique to individuals. My wife started using oxygen about 1 1/2 yrs back @ 2-3 lpm constant flow… Read more

]]> fa7b13b0d40f245695ab61ed023b6330 Sarv Punj posted an update: @charlene-marshall Hello Charlene, I have been […] https://pulmonaryfibrosisnews.com/forums/activity/p/20943/ Thu, 02 Jul 2020 15:28:17 -0500 @charlene-marshall
Hello Charlene,
I have been going through various issues relating to IPF but right now I am getting concerned with alarming issue of Pulmonary Hypertension as a sequel to IPF. As you know, my wife is a patient of IPF for the last about 8yrs. She was first hospitalised in Feb this year for 10 days. On return from hospital… Read more

]]> 1 86d689f81d78680614c0f2e3caf72e08 Sarv Punj replied to the discussion The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-patients-experience-prednisone/#post-24714 Wed, 24 Jun 2020 01:58:25 -0500 Reply to The IPF Patient's Experience with Prednisone

Hi everyone. I was reading some news items elsewhere which said that prednisone is generally not used in IPF patients. My wife however is now taking 35 mg prednisone together with Pirfenidone 800 mg twice daily and is on Oxygen 24×7. We tried to titrations prednisone to 30 mg with the intention of increasing Pirfenidone to 800 mg three times… Read more

]]> 72de0c1b1fd645afd7f9495246d366f5 Sarv Punj replied to the discussion The Frequency of Changing Your Nasal Cannula in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/the-frequency-of-changing-your-nasal-cannula/#post-24488 Tue, 26 May 2020 14:50:34 -0500 Reply to The Frequency of Changing Your Nasal Cannula

HiCharlene,
I read your query about changing the nasal cannula and some of the replies too. As you know, my wife is on Oxygen and uses Oximyzer (pendant type) which has a nasal cannula attached. The manufacturer has specified a months duration for changing the Oximyzer but we feel that it depends more on the upkeep and condition of the… Read more

]]> 66da8764ae71eb7b1dae3d49324dde9b Sarv Punj replied to the discussion EGCG Green Tea Extract in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/egcg-green-tea-extract/#post-24218 Sat, 02 May 2020 04:27:19 -0500 Reply to EGCG Green Tea Extract

Hello Everybody everybody on the Forum. Various posts on EGGC are very enlightening. I am still not sure which brand of Green Tea Extract I should buy for my wife. There are numerous brands available in India, local as well imported. Also what potency capsules are adequate. I will be grateful if more light is thrown in this regard.
Thanks.

Sarv

]]> e631619a68a982b893e9151c8268934a Sarv Punj replied to the discussion EGCG Green Tea Extract in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/egcg-green-tea-extract/#post-24188 Thu, 30 Apr 2020 16:09:31 -0500 Reply to EGCG Green Tea Extract

Friends I have read the news about EGCG found to be useful in treatment of IPF. While green tea is easily available, do we have to buy EGCG  (the green tea extract) specially or it is automatically delivered to the body by taking green tea regularly. Kindly educate me on this. Thanks.

sarv

]]> 1c89d23e8be36d5eaf1f3aca45a768d7 Sarv Punj posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/19429/#acomment-19455 Mon, 13 Apr 2020 16:22:38 -0500 Hi Charlene,
Thank you so much Charlene for the references. In fact I have already got a post from DrandyHall which is very informative. I am forwarding this to our pulmonologist for his perusal . I believe it will be professionally beneficial to him. Thanks again.

Sarv

In reply to - Sarv Punj posted an update Hello friends, I read about laser treatment being used for Corona virus and that research might help evolve some treatment for IPF too. I talked to my wife’s pulmonologist who was […] ]]> bb12da394e3f1ea2f70ee319f8b0260c Sarv Punj posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/19429/#acomment-19454 Mon, 13 Apr 2020 16:18:58 -0500 Hi Andrew,
Thank you so much for giving a personal account of the treatment undertaken by you for IPF. The link sent by you will surely of interest to our Pulmonologist. I am forwarding the same to him. I am greatly obliged for this information.
Best regards.
Sarv

In reply to - Sarv Punj posted an update Hello friends, I read about laser treatment being used for Corona virus and that research might help evolve some treatment for IPF too. I talked to my wife’s pulmonologist who was […] ]]> c250b394fcfc0621ba2cce293cd4e014 Sarv Punj posted an update: Hello friends, I read about laser treatment being used […] https://pulmonaryfibrosisnews.com/forums/activity/p/19429/ Sun, 12 Apr 2020 16:09:00 -0500 Hello friends,
I read about laser treatment being used for Corona virus and that research might help evolve some treatment for IPF too. I talked to my wife’s pulmonologist who was not aware of this development. He has asked me to share more details about the Later treatment procedure. Could some of the better informed members give… Read more

]]> 5 bc9181669a2a0bcd43a4ac4028ad78ab Sarv Punj posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/19334/#acomment-19424 Sun, 12 Apr 2020 03:14:47 -0500 Hello Mark. Great going for you.I thing Lung Transplant is a good option but for relatively younger age group. My wife was not recommended. She is already 77 plus.

In reply to - Sarv Punj posted an update Dear Friends I have read some other threads in the Forums with interest about patients suffering from IPF and being treated with OFev / Esibret and some using Oxygen too. It […] ]]> 8159364e4a365a4a7f6b91ca6bdd9d43 Sarv Punj posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/19334/#acomment-19342 Thu, 09 Apr 2020 15:09:49 -0500 Thank you Mark . It’s rather encouraging that you recovered your lung function by 75% and hopefully you will continue to improve further. This has kindled some hope in us that we can expect similar improvement in my wife’s condion over some time. Thank you again for reassuring.
Sarv

In reply to - Sarv Punj posted an update Dear Friends I have read some other threads in the Forums with interest about patients suffering from IPF and being treated with OFev / Esibret and some using Oxygen too. It […] ]]> b5a0fdc0f8c46493d91067a8f3904fe3 Sarv Punj posted an update: Dear Friends I have read some other threads in the […] https://pulmonaryfibrosisnews.com/forums/activity/p/19334/ Thu, 09 Apr 2020 14:27:11 -0500 Dear Friends
I have read some other threads in the Forums with interest about patients suffering from IPF and being treated with OFev / Esibret and some using Oxygen too. It is gratifying to note that most patients exhibit fairly good exercise tolerance. My wife 77 1/2 who was diagnosed with IPF 8 yrs ago right in the initial stages and has… Read more

]]> 5 3effc0fe9ce45a12a243461a92d90115 Sarv Punj replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-23831 Sun, 05 Apr 2020 12:45:55 -0500 Reply to Starting Ofev

Hi Sara,
It is heartening to know that your husband is feeling much better on OFev. Wish him full recovery.You mentioned about OPEN DOOR FOUNDATION . Will it be possible for you to share their email contact so that I could write to them for my wife who is suffering from IPF for the last 8 yrs. She was hospitalised this February for 10 days… Read more

]]> e13ff1151223b6ed9d41ce7f2c18d6ef Sarv Punj replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-23830 Sun, 05 Apr 2020 11:26:13 -0500 Reply to Starting Ofev

Hi Charlene,
Thank you very much for your prompt reply. I can understand what you said. Different persons may have different experience with the drug. My wife however refuses to restart OFev , In fact presently she is off Pirfenidone too on Doctor’s advice and taking only Omnacortil 30 mg once a day. We shall restart Pirfenex (Pirfenidone) as… Read more

]]> ba37d56b6df53ed4a37c5ee1200d1909 Sarv Punj posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/19136/#acomment-19167 Wed, 01 Apr 2020 10:03:56 -0500 No worry Mark. I have ordered Kidney and Lever Function tests today which might be helpful in deciphering her problem. Thanks.

In reply to - Sarv Punj posted an update Friends, as I have reported in my previous posts, my wife is on Nintedanib 150mg bid + Pirfenidone 400mg TDS and Omnacortil titrated to 20 mg od for the last over one month. Till […] ]]> bf46a22d9bbc94926735b4b99b91d5a7 Sarv Punj replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-23785 Wed, 01 Apr 2020 08:17:04 -0500 Reply to Starting Ofev

Dear Friends. I am from India. My wife who has been suffering from IPF for about 8 yrs and was doing well with Pirfenidone 800 mg three times a day and 10 mg omnacortil daily but after about 4 yrs of this treatment her breathlessness started going up and she had to use supplemental oxygen @ 2-3lpm day and night.This kept her going but with… Read more

]]> d23ab58f9617159ba533671f26b9083d Sarv Punj posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/19136/#acomment-19162 Wed, 01 Apr 2020 07:09:38 -0500 Thanks Mark. As I said before my wife was on both OFev and Esbriet concurrently but since she has been feeling very low for the last 3-4 days , the first reaction was that the only change in medication is addition of Ofev which could have caused this indisposition and she stopped OFev.I called her Pulmonologist who has advised to stop both… Read more

In reply to - Sarv Punj posted an update Friends, as I have reported in my previous posts, my wife is on Nintedanib 150mg bid + Pirfenidone 400mg TDS and Omnacortil titrated to 20 mg od for the last over one month. Till […] ]]> a9660565e4eaef793b9c87e837572f8f Sarv Punj replied to the discussion Dying from IPF in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/dying-from-ipf/#post-23769 Tue, 31 Mar 2020 14:23:41 -0500 Reply to Dying from IPF

Hi Magan,
It’s really enlightening how patiently you dealt with your late dad’s illness during his last five months. I have read the thread partially though but seem to have gained a lot. I am 81 and my wife is in late 77 yrs and is suffering from this life threatening IPF. I admire your courage too to have gone through the pain of losing your… Read more

]]> 057ab6e2f2c9d9c230d6579f35fa77ed Sarv Punj posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/19136/#acomment-19137 Tue, 31 Mar 2020 13:37:31 -0500 In continuation of my post above, I want to add that I am not really convinced as to why Nintedanib 150 mg bid can not be replaced by Nintedanib 100 mg three times a day , since the total dosage for the day remains 300mg and better distributed over the day in 3 doses of 100 mg each.

In reply to - Sarv Punj posted an update Friends, as I have reported in my previous posts, my wife is on Nintedanib 150mg bid + Pirfenidone 400mg TDS and Omnacortil titrated to 20 mg od for the last over one month. Till […] ]]> ea61ccb4d1552e1d3452a8324c487b59 Sarv Punj posted an update: Friends, as I have reported in my previous posts, my wife […] https://pulmonaryfibrosisnews.com/forums/activity/p/19136/ Tue, 31 Mar 2020 13:29:11 -0500 Friends, as I have reported in my previous posts, my wife is on Nintedanib 150mg bid + Pirfenidone 400mg TDS and Omnacortil titrated to 20 mg od for the last over one month. Till now she did not feel much difference in her general disposition. Instead for the last week or so she got multiple blisters in her tongue which made it difficult for… Read more

]]> 6 f7357b827b666d138b93a71ebc2f339b Sarv Punj replied to the discussion Nintedanib... Dosage in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/nintedanib-dosage/#post-23693 Thu, 26 Mar 2020 16:31:59 -0500 Reply to Nintedanib... Dosage

Dear Dr Salzberg,
Thank you very much for providing the contact details of OFEV Open Door, I will surely try to call them. I believe the number given by you is U S number. You also mentioned that 150 mg bid is more beneficial. I wanted to know if 100 mg three times a day (ie total dosage for the day is 300 mg) will give the same benefit or… Read more

]]> 91fbcb4fe43a75236809c61b5815f801 Sarv Punj started the discussion Nintedanib... Dosage in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/nintedanib-dosage/ Thu, 26 Mar 2020 13:43:16 -0500 Nintedanib... Dosage

Hi friends. I am a new member having joined the Forum only yesterday. In my introduction I had stated about my 77 yrs old wife who has been a patient of IPF for the last 8 yrs. She was diagnosed at very early stage of IPF and was put on Prednisine 40 mg daily which was titrated toa maintenance dose of 10 mg which was going up and down according… Read more

]]> 4c754d5057663625970cc51dacdcbb5f Sarv Punj replied to the discussion Sharing Your IPF Story: How Do You Feel About It? in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/sharing-your-ipf-story-how-do-you-feel-about-it/#post-23646 Wed, 25 Mar 2020 11:08:45 -0500 Reply to Sharing Your IPF Story: How Do You Feel About It?

Hi Charlene,

pits heartening as well as heart rending to read experiences of different IPF patients. I shared the story of my wife yesterday. She was started on Cyendiv 150 mg twice daily ( Same as OFev)  last month in combination with Perfenidone 400 mg three times a day after being hospitalised for 10 days due to sudden sudden exacerbation… Read more

]]> 78ac5adb159db9979c1ddad8a4b5280e Sarv Punj became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/18958/ Mon, 23 Mar 2020 15:23:53 -0500 1