Hi friends. I am a new member having joined the Forum only yesterday. In my introduction I had stated about my 77 yrs old wife who has been a patient of IPF for the last 8 yrs. She was diagnosed at very early stage of IPF and was put on Prednisine 40 mg daily which was titrated toa maintenance dose of 10 mg which was going up and down according to her need. Later as the disease progressed, she was prescribed Pirfenidone which was slowly titrated from 200 mg 3 times a day to 800mg 3 times a day according to her tolerance. This contained the progression reasonably well for about 4 yrs but then her breathlessness started increasing. The treating pulmonologist advised use of oxygen. Recently she had a severe exacerbatiin of the disease which necessitated hospitalization. This is when NINTEDANIB @150 mg BD was tried on her together with Pirfenidone 400 mg TDS. She is back home and and is continuing this regine for the last one month. She has of course to use Oxygen at 4 to 6 lpm 24×7. She is tolerating Nintedanib without any adverse side effects. However NINTEDANIB 150mg twice daily costs me whopping Rs66000 per month far beyond my capacity. I was wondering if the dosage can be rescheduled at 100 mg TDS which will cost me Rs 50000 per month resulting in substantial saving. Surprisingly Nintedanib 100 mg costs exactly half the price of 259 mg. I have yet to check with her Pulmonologist but meanwhile I thought of raising this issue in the forum in case someone has some experience in this regards. I will appreciate your response. Thanks.
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