Scott Johnson

First time posting.

I was diagnosed with IPF in early 2021.  Lung capacity was diminished, but not enough for oxygen.  Had a nasty cough and tired easier.  Cough continued to get worse.  March 2022 saw me in the ER due to the coughing and general weakness.  Came out of the hospital on oxygen 24/7.  Saw my pulmonologist, tested lung capacity was b…[Read more]

I was finally diagnosed with interstitial pulmonary fibrosis 20 months ago. I live in Southgate, MI, which is downriver Detroit. I go to a pulmonologist in Dearborn affiliated with Beaumont Hospital and another in Ann Arbor affiliated with Univ of Mich hospital. Finally got on Esbriet thanks to the mfgr covering the cost. No support group, but…[Read more]

Hi all. I was diagnosed with interstitial pulmonary fibrosis in March 2021. I had been having symptoms prior to that, none of the doctors found the problem until they had a pulmonologist check me. He detected the crackles right away. Oxygen level ok. He had me do pulmonary rehab that summer and started me on 50mg/day prednisone. Energy level…[Read more]