-
Scott Johnson replied to the topic Prednisone in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 1 week ago
First time posting.
I was diagnosed with IPF in early 2021. Lung capacity was diminished, but not enough for oxygen. Had a nasty cough and tired easier. Cough continued to get worse. March 2022 saw me in the ER due to the coughing and general weakness. Came out of the hospital on oxygen 24/7. Saw my pulmonologist, tested lung capacity was b…[Read more]
-
Scott Johnson replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 6 months, 2 weeks ago
I was finally diagnosed with interstitial pulmonary fibrosis 20 months ago. I live in Southgate, MI, which is downriver Detroit. I go to a pulmonologist in Dearborn affiliated with Beaumont Hospital and another in Ann Arbor affiliated with Univ of Mich hospital. Finally got on Esbriet thanks to the mfgr covering the cost. No support group, but…[Read more]
-
Scott Johnson replied to the topic Esbriet and coughing in the forum Esbriet (Pirfenidone) 6 months, 2 weeks ago
Hi all. I was diagnosed with interstitial pulmonary fibrosis in March 2021. I had been having symptoms prior to that, none of the doctors found the problem until they had a pulmonologist check me. He detected the crackles right away. Oxygen level ok. He had me do pulmonary rehab that summer and started me on 50mg/day prednisone. Energy level…[Read more]
-
Scott Johnson became a registered member 6 months, 3 weeks ago
Welcome to the PF forums Scott, we’re glad you found us.