Ronald Cole

I was diagnosed with IPF August 2021. Of course I was told I was told I had the disease for about 5 years. Was put on ofev and 24/7 oxygen. I decided to get listed for a bilateral lung transplant WOW! I’ve always been in good shape, never smoke or worked around chemicals. Yet this disease found me. April 23, 2022 I received my new lungs. Post…[Read more]

Hello Duncan,

• I believe you should start the antifibrotics. Having IPF for seven years I started taking medication in my 6th year. The disease took hold and now I am awaiting a transplant. If I started it would prolonged couple more years. I wish you the best with your decision.

Hello Lori,

I share your struggle.  I can stay positive  but not all the time. I am going through pre-transplant work up. I will need a bilateral transplant. Life has its twist and turns,  somethings are out of our control.  I will pray for you, may the Lord strengthen your faith and his spirit walk with you on this journey. 🙏

Ron

.ark thanks for sharing.  I am in the pre transplant work up. Did you have any of the problems you mentioned pre transplant,  or did develop after?

Ron