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Ronald Cole

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@spegeye

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    Ronald Cole replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year ago

    I was diagnosed with IPF August 2021. Of course I was told I was told I had the disease for about 5 years. Was put on ofev and 24/7 oxygen. I decided to get listed for a bilateral lung transplant WOW! I’ve always been in good shape, never smoke or worked around chemicals. Yet this disease found me. April 23, 2022 I received my new lungs. Post…[Read more]

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    Ronald Cole replied to the topic Possible Cause of IPF – Ammonia ingestion and Statin?? Progressive? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    Hello Duncan,

    • I believe you should start the antifibrotics. Having IPF for seven years I started taking medication in my 6th year. The disease took hold and now I am awaiting a transplant. If I started it would prolonged couple more years. I wish you the best with your decision.
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    Ronald Cole replied to the topic Depressed and need support in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    Hello Lori,

    I share your struggle.  I can stay positive  but not all the time. I am going through pre-transplant work up. I will need a bilateral transplant. Life has its twist and turns,  somethings are out of our control.  I will pray for you, may the Lord strengthen your faith and his spirit walk with you on this journey. 🙏

    Ron

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    Ronald Cole replied to the topic Eliminating Immunosuppressants for a Transplant Patient in the forum Pre/Post Lung Transplant 1 year, 8 months ago

    .ark thanks for sharing.  I am in the pre transplant work up. Did you have any of the problems you mentioned pre transplant,  or did develop after?

    Ron

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    Ronald Cole changed their profile picture 1 year, 9 months ago

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    Ronald Cole became a registered member 1 year, 10 months ago

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      Christie Patient replied 1 year, 10 months ago

      Welcome to the forums Ronald, thanks for joining us.

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