Ronald Cole replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year ago
I was diagnosed with IPF August 2021. Of course I was told I was told I had the disease for about 5 years. Was put on ofev and 24/7 oxygen. I decided to get listed for a bilateral lung transplant WOW! I’ve always been in good shape, never smoke or worked around chemicals. Yet this disease found me. April 23, 2022 I received my new lungs. Post…[Read more]
Ronald Cole replied to the topic Possible Cause of IPF – Ammonia ingestion and Statin?? Progressive? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
- I believe you should start the antifibrotics. Having IPF for seven years I started taking medication in my 6th year. The disease took hold and now I am awaiting a transplant. If I started it would prolonged couple more years. I wish you the best with your decision.
Ronald Cole replied to the topic Depressed and need support in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
I share your struggle. I can stay positive but not all the time. I am going through pre-transplant work up. I will need a bilateral transplant. Life has its twist and turns, somethings are out of our control. I will pray for you, may the Lord strengthen your faith and his spirit walk with you on this journey. 🙏
Ronald Cole replied to the topic Eliminating Immunosuppressants for a Transplant Patient in the forum Pre/Post Lung Transplant 1 year, 8 months ago
.ark thanks for sharing. I am in the pre transplant work up. Did you have any of the problems you mentioned pre transplant, or did develop after?
Ronald Cole changed their profile picture 1 year, 9 months ago
Ronald Cole became a registered member 1 year, 10 months ago