[Steven Phillips]

I’ve been on Ofev now for 3 months. I started out with 150 two times daily. I’ve been on 2000 mg mycophenolate daily also. The side effects have been so numerous and severe that my pulmonologist halved my dosage but hasn’t helped. I’m having abdominal pain, chest pain, diarrhea, headaches as well as other body aches. The mycophenolate causes constipation which is an interesting combination with the diarrhea of the Ofev. I take Ondansetron for nausea but that doesn’t always help. The nausea makes eating difficult. I’ve consulted all of my doctors and they don’t have any answers nor do the Open Door consultation which tell me they are sorry and I should call my doctor. I go back to my pulmonologist in a couple of weeks to see if my lung volume has improved, which I doubt. Not much good news .