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Sreelekshmy

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@sree

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    Sreelekshmy replied to the topic David Swain – a brave fight against IPF in the forum In Loving Memory 1 year, 2 months ago

    So sorry to hear this sad news. Our heartfelt condolences and prayers to you and your family

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    Sreelekshmy replied to the topic Franklin Price ♥️ in the forum In Loving Memory 1 year, 3 months ago

    Very sorry to hear this.

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    Sreelekshmy replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    @Christie

    Thanks Christie. this gives some hope.

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    Sreelekshmy replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    @Ben,

    Best of luck with your transplant process . Will there be any IPF symptoms post transplant?

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    Sreelekshmy replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    Thanks Christie

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    Sreelekshmy replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    What is the criteria for lung transplant? Do we have to be really sick to qualify for that?

    Sree

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    Sreelekshmy replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    Thanks for you reply Marianne. This is really helpful. I will also ask my doctor about the pulmonary rehabilitation

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    Sreelekshmy replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    Hi Ben,

    Thank you very much for your reply. I am surprised at the cost of Tyvaso. Isnt it covered by the insurance?

    Sree

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    Sreelekshmy replied to the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    Sorry to keep the oxygen saturation above 88

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    Sreelekshmy started the topic New to IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    Hi,

    I am diagnosed with IPF in January 2021 and started taking Ofer in March; so far tolerating it well. I am not on Oxygen. I walk regularly and can see that my pace is decreasing to keep the Oxygen saturation above 98.I would like to know what else I need to do other than of every to minimize my symptoms and increase lung efficiency. I read…[Read more]

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    Sreelekshmy became a registered member 1 year, 4 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 1 year, 4 months ago

      Thanks for joining the PF forums Sree, welcome!

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