[Steve Mobbs]

6 years ago I personally solicited a pulmonary assessment with Mayo and was ran through the whole gamut of CT Scans and pft testing.My insurance,Tricare allows for self referral and I have a family history of Pulmonary deaths.I was not symptomatic and still only have limitations when running or carrying items upstairs.The diagnosis was lung scarring and the pattern suggested IPF.

I have had an Annual assessment at Mayo and last year at National Jewish Health in Denver and yes the Ipf is always confirmed but fortunately slow moving so far.I briefly tried OFEV which was covered by my carrier,express scripts.My only disillusionment with all the medical processes was the admin staff at Mayo let my prescription languish for weeks before I got them on track.I only took OFEV for a short period and didn’t like the side effects and my pulmonologist was not encouraging of the drug.

Although it may sound crass and forgive me if I offend but several types of diseases like IPF are in the classification of Diagnose and Adios.I personally hope to move the needle by volunteering for a clinical study.I may even be given a placebo and if I receive the study drug and show improvement the drug will not be dispensed to me as it will be lacking FDA approval.Maybe some progress for the next generation.

[Steve Mobbs]

I also live at sea level and have a regular walking program with no difficulties at present.I was a recreational runner for 25 years but can not jog very far now.

Last December I went to National Jewish hospital in Denver for an annual assessment and was shut down after 2 minutes on the 6 minute walk test.The difference is clearly altitude.

I am diagnosed with IPF since 2017.