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Steve williams

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@stevew

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    Steve williams replied to the topic Low dose of Esbriet, is it worthwhile? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Update: hi all, thank you for all the replies. Up to to 7 x 267 now and ok apart from need to nap for an hour most afternoons.

    onward & upward!

    regards

    steve

     

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    Steve williams replied to the topic Low dose of Esbriet, is it worthwhile? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 12 months ago

    Sorry guys, appreciate the feedback but had to change my email sovjust read them all!

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    Steve williams replied to the topic Taking time off from esbriet in the forum Esbriet (Pirfenidone) 1 year, 12 months ago

    Thanks for all the advice

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    Steve williams started the topic Low dose of Esbriet, is it worthwhile? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 3 months ago

    <span style=”-webkit-text-size-adjust: auto; caret-color: #000000; color: #000000; font-family: Lato, Helvetica, Arial, sans-serif;”>Hi guys. I was started on Esbriet last year, but up to the 3 x 800 dose very quickly. Side effects not good. Extreme nausea & fatigue, about 2 useful hours a day. Stopped totally (with consultants blessing); over…[Read more]

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    Steve williams started the topic Taking time off from esbriet in the forum Esbriet (Pirfenidone) 2 years, 5 months ago

    Hi all, I’m struggling with the nausea & severe fatigue after a few months on esbriet (I’m down to maybe four useful hours each evening); & am thinking if stopping for two weeks over Christmas to get something like a normal life fir a week or so. Next appt scheduled 23nd January What do you guys think?

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    Steve williams started the topic Fatigue & Nausea with Esbriet in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 5 months ago

    Hi all. Thanks for the add to the group.

    I was diagnosed 12 months ago & tried Ofev. Didn’t get on with the side effects, (don’t ask).

    Been on Esbriet for about 3 months. Dropped to 2 x 800mg daily, but due to try 3 x 800mg again in January/Feb.

    I’m finding I get up slightly nauseous, take the pill, get very nauseous until around 10-11 or even…[Read more]

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    Steve williams became a registered member 2 years, 5 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 5 months ago

      Hello Steve, we are delighted to have you as a member of the pf forum. Welcome!

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