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Sue Ann

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@sueann

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    Sue Ann replied to the topic Symptoms vs O2 levels in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 6 days ago

    Chris,

    My situation sounds very similar to yours. SOB a lot, but O2 is low to mid 90’s. Dr’s explanation leaves something to be desired.

    I have the same questions!  Thanks for starting the thread.

    S.

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    Sue Ann replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years ago

    Hello,

    I’m new to the forum, just diagnosed January 2020 with mild IPF. Started Ofev about a month ago with few side affects. I’m blessed in that aspect.  Still trying to learn symptoms to attribute to IPF, and environmental influences that bother my lungs. My lungs burn most of the time and I’m wondering if this is common for other IPF…[Read more]

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    Sue Ann became a registered member 3 years ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years ago

      Hello Sue Ann, welcome and thank you for joining your pulmonary fibrosis forum.

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