Biography

Name

Susan Hafer Hill

Nickname

susan-hafer-hill

Year of Birth

1945

Gender

Female

Location

Texas

Relationship

Patient

Short Bio

I was diagnosed with IPF in June of 2021.  At that time, I had no noticeable symptoms, and it was discovered via a CT scan of a shoulder injury.  When I finally could get in to see a Dr. due to Covid, I was down to an 80% lung function.  By October of 2021 I was experiencing shortness of breath and by November I was down to 60% lung function.  I started OFEV in late November and went on Level 3 Oxygen 24/7.  I changed Doctors in February 2022 and since then my fibrosis has been stable.  I am beginning to show some flagged numbers with my liver function, and I have had some heart issues but after a recent right heart cath, my heart pressure was found to be normal.

Type of Diagnosis

IPF

Treatment / Medical Facility

Baylor Medical Hospital Dallas Texas

Current medication regimen

OFEV 150 M X2

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

2-3 years

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