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Sunder Raman

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@sunderraman

@charlene-marshall Hi Charlene. I was diagnosed with ‘Hypersensivity Pneumonitis.’. I started on Ofev 1 month back I was able to read participant posts on Ofev Forum but I could find way to write ‘post’ it directly. Do I always have to go through you to get my posts online? Sunder Raman [email protected] View
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    Sunder Raman replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 2 years ago

    Sorry about typo I’m taking 50 mg CellCept pill not 5mg.

  • Profile picture of Sunder Raman

    Sunder Raman replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 2 years ago

    I have on Ofev 15oMg pill twice a day. I am also taking CellCept 3 in the morning 5mg each, and 3 in the evening.  In other words, 300mg of Ofev and 300mg of CellCept every day.
    My side effects are annoying but bearable.  Frequent bowel movements every day is an annoyance.

    I am told by my pulmonologist that my lung conditions are more or less s…[Read more]

  • Profile picture of Sunder Raman

    Sunder Raman started the topic Hypersensitivity Pneumonitis (a variant of ILD similar to IPF but less severe) in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 3 months ago

    I have been diagnosed with HP ‘Hypersensivity Pneumonitis’ different from IPF.  I would love to share experiences with others on the forum with HP form of lung disease.

    Sunder

  • Profile picture of Sunder Raman

    Sunder Raman replied to the topic Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 3 months ago

    Hello everybody.  This is asunder, I have been on Ofer 150mg taking twice a day with protein-rich meals.  I have had very manageable side effects.  I am moving my bowels 8 times a day.  It has not bothered me much.  Feels like it has helped with my shortness of breadth.  The key to taking Ofev seems to be taking it immediately after high-…[Read more]

  • Profile picture of Sunder Raman

    Sunder Raman posted an update 2 years, 5 months ago

    @charlene-marshall
    Hi Charlene. I was diagnosed with ‘Hypersensivity Pneumonitis.’. I started on Ofev 1 month back
    I was able to read participant posts on Ofev Forum but I could find way to write ‘post’ it directly. Do I always have to go through you to get my posts online?
    Sunder Raman
    [email protected]

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 5 months ago

      Hi Sunder, you can go to a forum and click on the link to access it and begin your own topic by typing in the text box and hitting submit. You have the option of responding to a topic by another member. You also have the option of typing as you did for this update. I hope this makes it easier. Take care, Mark

  • Profile picture of Sunder Raman

    Sunder Raman posted a new activity comment 2 years, 5 months ago

    Hi Mark, Thank you for the welcome. I would love to share mutual experiences with anybody on the forum diagnosed with ‘Hypersensitivity Pneumonitis’,.
    I am on Ofer for 1 month, I have not noticed any improvement yet.
    Sunder

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  • Profile picture of Sunder Raman

    Sunder Raman became a registered member 2 years, 5 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 5 months ago

      Hi Sunder, thank you for joining your pulmonary fibrosis forum. Welcome!

    • Profile picture of Sunder Raman
      Sunder Raman replied 2 years, 5 months ago

      Hi Mark, Thank you for the welcome. I would love to share mutual experiences with anybody on the forum diagnosed with ‘Hypersensitivity Pneumonitis’,.
      I am on Ofer for 1 month, I have not noticed any improvement yet.
      Sunder

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