@sunderraman
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Sunder Raman replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 2 months, 2 weeks ago
Sorry about typo I’m taking 50 mg CellCept pill not 5mg.
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Sunder Raman replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 2 months, 2 weeks ago
I have on Ofev 15oMg pill twice a day. I am also taking CellCept 3 in the morning 5mg each, and 3 in the evening. In other words, 300mg of Ofev and 300mg of CellCept every day.
My side effects are annoying but bearable. Frequent bowel movements every day is an annoyance.I am told by my pulmonologist that my lung conditions are more or less s…[Read more]
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Sunder Raman started the topic Hypersensitivity Pneumonitis (a variant of ILD similar to IPF but less severe) in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 2 weeks ago
I have been diagnosed with HP ‘Hypersensivity Pneumonitis’ different from IPF. I would love to share experiences with others on the forum with HP form of lung disease.
Sunder
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Sunder Raman replied to the topic Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 2 weeks ago
Hello everybody. This is asunder, I have been on Ofer 150mg taking twice a day with protein-rich meals. I have had very manageable side effects. I am moving my bowels 8 times a day. It has not bothered me much. Feels like it has helped with my shortness of breadth. The key to taking Ofev seems to be taking it immediately after high-…[Read more]
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Sunder Raman posted an update 7 months, 1 week ago
@charlene-marshall
Hi Charlene. I was diagnosed with ‘Hypersensivity Pneumonitis.’. I started on Ofev 1 month back
I was able to read participant posts on Ofev Forum but I could find way to write ‘post’ it directly. Do I always have to go through you to get my posts online?
Sunder Raman
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Sunder Raman posted a new activity comment 7 months, 1 week ago
Hi Mark, Thank you for the welcome. I would love to share mutual experiences with anybody on the forum diagnosed with ‘Hypersensitivity Pneumonitis’,.
I am on Ofer for 1 month, I have not noticed any improvement yet.
Sunder -
Sunder Raman became a registered member 7 months, 1 week ago
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Hi Sunder, thank you for joining your pulmonary fibrosis forum. Welcome!
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Hi Mark, Thank you for the welcome. I would love to share mutual experiences with anybody on the forum diagnosed with ‘Hypersensitivity Pneumonitis’,.
I am on Ofer for 1 month, I have not noticed any improvement yet.
Sunder
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Hi Sunder, you can go to a forum and click on the link to access it and begin your own topic by typing in the text box and hitting submit. You have the option of responding to a topic by another member. You also have the option of typing as you did for this update. I hope this makes it easier. Take care, Mark