Biography

Name

Ted

Nickname

Ted

Year of Birth

12/15/1950

Gender

Male

Location

North Caldwell, New Jersey

Relationship

Patient

Short Bio

I’m 71 and was diagnosed with IPF in 2018 and have been on Esbriet ever since. I’m a Civil Engineer who spent 50 years designing site plans & subdivisions for residential & commercial projects predominantly in NJ. I also built a few houses, the most recent of which I completed in the spring of 2018 at which time I had very little if any evidence of any implications of my IPF. For the next 2 1/2 years my pulmonary function declined very slowly to the point that I needed to be on 2 to 3 liters/min of O2 when doing my every other day 1 hour on my stationary bike at 10 mph. Over the last 6 months my pulmonary function has declined more quickly to the point that now very minor exertion without O2 would push my O2 into the 70’s.

I continue to be on 867 mg of Esbriet 3 x per day with minor side effects including feeling tired & loosing weight easily however if I eat well my weight remains stable at a healthy weight.

Type of Diagnosis

IPF

Treatment / Medical Facility

867 mg Esbriet 3 x per day while being treated by Dr Dimitry of Pumonary & Allergy Associates in the Morristown Hospital system.

Current medication regimen

867 mg Esbriet 3x per day

Lung transplantation status

eligible

Supplemental Oxygen

yes

Best advice for PF symptom management

Keep fit, use O2 when you need it, avoid exposure to flu, colds, Covid, etc remain optimistic, don’t get overtaken by blogs & reading about IPF (leave that to others if you can) while you focus on work or hobbies or enjoying your family, and always take one day at a time.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

3 1/2 years

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