Short Bio

60-year-old female. Work FT as a proposal manager. Diagnosed with Sjogren’s Syndrome 23 years ago and now ILD, which my doctors attribute to Sjogren’s. I survived stage 4B cancer only to be diagnosed with severe lung disease. Taking CellCept and Ofev. I’m blessed to have great insurance, access to great healthcare, and great docs. And a great husband who has been my rock through it all. I would not have made it this far without him, that I do know!

Best advice for PF symptom management

Listen to your body. Avoid triggers like poor air quality. Exercise when you feel like it. Find someone to talk to outside of your friends and family, such as a therapist or fellow patients.

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

5 years

Privacy Policy and Terms of Use

I agree