Short Bio |
60-year-old female. Work FT as a proposal manager. Diagnosed with Sjogren’s Syndrome 23 years ago and now ILD, which my doctors attribute to Sjogren’s. I survived stage 4B cancer only to be diagnosed with severe lung disease. Taking CellCept and Ofev. I’m blessed to have great insurance, access to great healthcare, and great docs. And a great husband who has been my rock through it all. I would not have made it this far without him, that I do know!
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Best advice for PF symptom management |
Listen to your body. Avoid triggers like poor air quality. Exercise when you feel like it. Find someone to talk to outside of your friends and family, such as a therapist or fellow patients.
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How long have you or the person that you are caring for had PF? |
5 years
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