@tinadonihoo
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Maria Donihoo replied to the topic Lung Biopsy in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week ago
Hi Deb!
I had an open lung biopsy (December 14, 2022) because my doctor said he had to know how to treat my IPF. I wish I would have gotten a second opinion! I am still in pain from the surgery and my breathing seems to be worse! It doesn’t matter what kind of IPF you have because there’s only two different medications to treat it and they are…[Read more]
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Maria Donihoo replied to the topic Questions about Ofev in the forum Using Our Forums 2 weeks ago
I forgot to mention I am on the 150mg. 2 times per day! I also normally have high blood pressure but it has been under control!
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Maria Donihoo replied to the topic Questions about Ofev in the forum Using Our Forums 2 weeks ago
Thank yo so much for your reply! This is truly a wonderful site with people who care about each other and share their experiences of what they have gone through. I will eventually try the Ofev again after I retire in May. I’m just dreading the side effects I had ( night blood pressure and dizziness). My pulmonologist actually asked the nurse ho…[Read more]
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Maria Donihoo started the topic Questions about Ofev in the forum Using Our Forums 2 weeks, 1 day ago
I started Ofev in January 2023, after having an open lung biopsy, and I only took the medicine for 3 days when I started getting really high blood pressure and I was really dizzy to the point of almost vomiting. I called my doctor and he said to stop it and see what happens. Well I haven’t taken it since then and it is now March 2023. My doctor…[Read more]
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Maria Donihoo became a registered member 1 month ago
