Pulmonary Fibrosis News Forums | Tom Pratt | Activity https://pulmonaryfibrosisnews.com/forums/members/tomp/activity/ Activity feed for Tom Pratt. Tue, 07 Apr 2026 13:21:14 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 07f83d4cd40032d53eb7e6b52ea9904a Tom Pratt replied to the discussion What you need to know about Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/need-know-ofev/#post-21838 Sun, 03 Nov 2019 22:08:47 -0600 Reply to What you need to know about Ofev

Hi @janette   I was diagnosed with pulmonary fibrosis in May of 2015 and all that was offered to me was 20 mg Prednisone to suppress my immune system and hopefully slow the progression .  I was referred to Duke in June of 2017 and tried to get into the trial for Ofev, but was turned down.  I have recently started Ofev and have experienced none… Read more

]]> 40a0277fab25ccde7b7b2a9dbbf039ed Tom Pratt posted an update: Hi Charlene, I have been in touch with Dr. Hall, and […] https://pulmonaryfibrosisnews.com/forums/activity/p/15987/ Sat, 02 Nov 2019 03:00:53 -0500 Hi Charlene, I have been in touch with Dr. Hall, and he informed me of a office in Greensboro that offered laser therapy. I have contacted them and have a consult set up for nest week. Thank you for all you do on this site. Tom

]]> 1 81769c15cb595ea4cc0a4ed6b5517a18 Tom Pratt posted an update: I recently asked if anyone was currently taking laser […] https://pulmonaryfibrosisnews.com/forums/activity/p/15981/ Fri, 01 Nov 2019 17:32:07 -0500 I recently asked if anyone was currently taking laser 4 treatment in Greensboro, and @drandyhall was kind enough to steer me in the right direction. I have scheduled a consultation for next week, and will keep you informed of my progress and impressions of the treatment.

]]> 0 0c2b32d3b2ac3390d7603a246fe628cd Tom Pratt replied to the discussion Gabapentin For IPF-Related Cough? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/gabapentin-for-ipf-related-cough/#post-21821 Thu, 31 Oct 2019 20:41:04 -0500 Reply to Gabapentin For IPF-Related Cough?

@marshaharris,  Thank you for your reply. I currently have a message in to my pneumologist asking about laser therapy.  Just  wondering, is anyone taking laser 4 treatment in the area of Greensboro or Winston Salem, NC?   I’m know that chiropractic offices in these cities have these lasers, but can’t find any mention of using them for… Read more

]]> 4af38356e793a033689fc7e9d6f66b51 Tom Pratt joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/15960/ Thu, 31 Oct 2019 01:34:02 -0500 0 be78d805bff3f5f4275bb049554e7780 Tom Pratt replied to the discussion Gabapentin For IPF-Related Cough? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/gabapentin-for-ipf-related-cough/#post-21815 Thu, 31 Oct 2019 00:44:32 -0500 Reply to Gabapentin For IPF-Related Cough?

You’ll have to excuse me while I try to find my way around the forum.  I’m somewhat confused as to where the latest threads are and should I be on some of them.  For instance,  I have not heard of level 4 lasers from 2 different pulmonologists that should know of any treatments.  Can that be discussed here or is that another thread?

]]> 080ba721c430e031dbe3307951a9222a Tom Pratt replied to the discussion Gabapentin For IPF-Related Cough? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/gabapentin-for-ipf-related-cough/#post-21801 Wed, 30 Oct 2019 14:46:26 -0500 Reply to Gabapentin For IPF-Related Cough?

I have been on Gabapentin for 3 – 4 months and have noticed that my cough is MUCH better. I never attributed it to the Gabapentin until I started following this forum. It has been around a long time and is inexpensive in the US. I take 600MG twice a day.

]]> 33cfa9f95799b677036854b79ed0d351 Tom Pratt replied to the discussion Ofev in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-3/#post-21800 Wed, 30 Oct 2019 14:33:05 -0500 Reply to Ofev

@allang

Hi Allan,
I am new to this forum, and have just started Ofev. I am on medicare with plan B supplement in the US and the copay for me is $2800 for the first month and $500 thereafter except for the “doughnut hole”. I assume it will be about $2800 or more for that time. I have decided to pull the money from my life savings to pay for it… Read more

]]> d39eb0d88f04dfce3b0cd6a6f944b9c3 Tom Pratt replied to the discussion Clearing Throat in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/clearing-throat/#post-21799 Wed, 30 Oct 2019 14:05:28 -0500 Reply to Clearing Throat

Hi, Charlene and Lindas
I am a first time poster, having joined the forum yesterday. I have just started Ofev 5 days ago and so far feel better with no side effects, but i’m waiting for the symptoms to start. I have been on Flonase for a couple of years and think it helps. I was prescribed gabapentin for neuropathy in feet about 3 months… Read more

]]> d127886dbefdc2db805667c83bef976d Tom Pratt became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/15939/ Wed, 30 Oct 2019 11:12:29 -0500 1