This topic contains 8 replies, has 5 voices, and was last updated by  Charlene Marshall 2 months, 4 weeks ago.

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  • #17966
     Charlene Marshall 
    Keymaster

    Hi Everyone,

    Just a quick topic tonight as it is late and I am really tiring out these days. It is our year-end at work, so the hours are exhausting me, but more on that another time. As I was editing / replying to some comments on my columns, which take place outside of the forums, I came across a member who mentioned an effective cough suppressant for him.

    Has anyone talked to their doctor about or tried Gabapentin for their IPF-related cough? 

    The member who wrote to me said this worked wonders for him and I’d not heard of it before so I wonder if others have. If you’ve discussed/tried this, please let the group know whether or not you felt it was beneficial in reducing your cough.

    Thanks in advance,
    Charlene.

  • #17989
     May Starr 
    Participant

    I take Gabapentin every night for restless legs or Neuropathy. The only time I really cough is when I have phlegm in my throat or chest. I don’t seem to have the dry cough I read about other people having so I wonder if that’s because of the Gabapentin

    • #18020
       Charlene Marshall 
      Keymaster

      Good morning May,

      Thanks for sharing your experience and contributing to this topic thread. Certainly an interesting one! I’d not heard of Gabapentin being used for the pesky IPF-related dry cough, but it seems as though others have. Glad you don’t have it regularly, and I wonder if it is because of the Gabapentin. Have you been on it for restless legs/neuropathy for a long time? I wonder if there is indeed a link here. Thanks for sharing!
      Charlene.

       

  • #17995
     Bill Ecton 
    Participant

    My doctor prescribed off-label use of Gabapentin for my dry cough.  He prescribed one 300mg Gabapentin twice a day, and it took care of the cough in 2 to 3 days.  I take the “Gaba” everyday still, and the dry cough has never returned.  Note that as May stated above, it doesn’t help with a cough due to phlegm/congestion, but it sure took care of my dry cough.

    • #18021
       Charlene Marshall 
      Keymaster

      Wow, thank you for sharing this Bill ( @becton1948 ) !

      Sounds like your doctor was onto something when he/she knew to prescribe Gabapentin for an off-label use. Really glad it helped reduce the dry cough, and that its never returned for you. That is wonderful. I may need to investigate this going forward, as I don’t have the congestion/phlegm cough but the dry cough is starting to irritate my chest muscles so if I can relieve it that would be amazing. Thanks again for sharing…

      Wishing you well!
      Charlene.

       

  • #17996
     john sliwinski 
    Participant

    I am on 1800mg of gabapentin daily (i.e. 600mg every 8 hours). My cough has subsided but not entirely. Prior to be prescribed the med I used to cough all day long. I explained that to my pulmonologist at Penn Med and she started me on a low dose and titrated me up to 2400 mg which was too much. I feel comfortable with 1800mg but that dose could be different for someone else. I am nt saying it is the coughing med and htat it will stop you from coughing but it does help. Talk to your MD about it and go from there. Would I give it up? No.

    • #18022
       Charlene Marshall 
      Keymaster

      Thanks so much for sharing your experience with Gabapentin and the IPF-related cough, John! I am always curious to hear from others about their experiences so I appreciate you writing. Glad you found a dosing solution that works well for you now and one you’re comfortable with. I do think I’ll speak to my MD about this – glad it is reducing the cough for you 🙂
      Cheers,
      Charlene.

  • #18003
     Kent Allison 
    Participant

    I have been on gabapentin for more than 3 years now and it has almost entirely eliminated my coughing.  I take a 600 mg tablet 3 times a day and never miss a dose.  If you haven’t tried it, you should!  Good luck.

    Kent Allison

     

  • #18023
     Charlene Marshall 
    Keymaster

    Thanks for sharing this @kentallison, I am so grateful to others that they are willing to share their personal experiences on the forum for others to learn from. Certainly sounds like this is a more common approach to reducing the pesky IPF-related cough than I fever knew so that is great. Looking forward to discussing this with my pulmonologist soon. Really glad your dosing and time on the drug has reduced your cough almost entirely. That is great news!

    Take care,
    Charlene.

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