This topic contains 15 replies, has 12 voices, and was last updated by  Joan E. Lynch 15 hours, 52 minutes ago.

  • Author
    Posts
  • #19423
     Cynthia 
    Participant

    Often when I first lie down to go to sleep at night I find I have to keep clearing my throat. It can be quite annoying. Does anyone else suffer from this, and is there anything I can do to stop it? Because this seems to happen when I’m lying down, I’m wondering if I should get one of those wedges they recommend for acid reflux.

  • #19424
     Mark Koziol 
    Keymaster

    Hello Cynthia, I clear my throat constantly. One reason is I feel it is like a nervous twitch for me. Also I think part of the reason is I have post nasal drip. I take a daily over the counter allergy pill. You might want to try sleeping with pillows lying at an angle with your head slightly elevated. Talk to your physician, maybe they can diagnose the reason this is happening.

    • #19426
       Cynthia 
      Participant

      Mark, yes, I have post-nasal drip too. In fact that’s what they blamed my chronic cough on for over a year before I got the ILD diagnosis.

      • #19430
         Cynthia 
        Participant

        It sure seems like there’s some relationship between IPF/PF and sinus issues, post-nasal drip, runny nose, etc. Have there been any studies linking them? Acid-reflux also seems to be in the mix.

        • This reply was modified 4 months, 4 weeks ago by  Cynthia.
  • #19425
     Glenda Rouland 
    Participant

    Yes all the time sometimes when I lay down keep doing until through is sore.   Bought Grossan nasal irrigator on amazon at dr advice makes a huge difference.

    • #19427
       Cynthia 
      Participant

      Thanks, Glenda. I’ll ask my doctor about that at my next appointment. It’s really annoying when I’m trying to fall asleep.

  • #19429
     Tom Schroeder 
    Participant

    My problem seems to be just the opposite … I have trouble clearing my throat when I’m vertical.  With my back issues, I seem to be best at night when I’m horizontal, on my BIPAP machine and the head of the bed is elevated about 5 inches.  As I understand, acid reflux may have been one of the causes of my PF.  First thing the doc suggested was to slant the bed and it seems to help.  Before investing in a wedge, you might try raising the head of the bed with a few bricks to see if it works for you.

    • #19434
       Cynthia 
      Participant

      Thanks, Tom. I’ll try that.

  • #19436
     linda waldschmidt 
    Participant

    My throat clearing is during the day, like i have something stuck in my throat. I have some heartburn. I’ve tried allergy meds and did not notice any difference. Any body have suggestions. And could it be part of having this disease.

  • #19441
     Lindas 
    Participant

    Hi Cynthia, I also have throat problems. Ppost nasal drip was causing coughing when I went to bed. That was allergy and was cleared up with antihistamines. My Dr. told me to try 2 or 3 until I found one that worked for me. That was years ago and still have to take it. I also have throat clearing problems​ when vertical. Thick mucous seems to accumulate. Did not have this until I found out I have PF. Also sleeping with 2 pillows helps post nasal drip which I developed long before PF.

     

     

  • #19453
     Jeannie 
    Participant

    I have throat clearing and post nasal drip when vertical. So far I have tried allergy medicine but it is not helping. I would like to know what allergy medicine the rest of you take if you take allergy medicine.

  • #19454
     Marianne 
    Participant

    Hi all –  My pulmonary doctor referred me to an ENT doctor because primary care doctor said I had acid reflux.  ENT doctor and a speech therapist had me doing exercises instead of clearing my throat or coughing.  I still do it but not as much.  I also drink water or do a breathing exercise when I feel like I need to cough.  I still see the ENT doctor but they spread my appointments out to 4 months instead of every month.  When it was thought I had acid reflux and that was thought to be contributing to my ILD, I was referred out to a general surgeon for further testing and possible surgery for a hiatal hernia.  Surgeon determined I did not have acid reflux and sent me back to my pulmonary doctor.  For about 8-9 months I had like 3-5 doctors visits each month to try to figure out if my dry chronic cough was separate from my ILD issue or if they were connected.  Not coughing as much as I was but today has been a bad coughing day.  I am wondering if because I walked outside this morning and there is lots of pollen in the air.  In this medical journey it was determined that I have allergies to dog and cat dander as well as many grasses and trees.  I am not currently taking any medication for any allergies.  I actually was not aware of when I was clearing my throat.  I know throat clearing for me is much worse after a bronchoscopy of which I had 3.

    Marianne

  • #19456
     paula 
    Participant

    Not sure if I am dealing with the same issue (although I do have the nasal drip and nose bleeds), but when I am talking all the sudden my voice craps out on me. Sounds like I (for a better lack of description) a frog in my throat. Even trying to clear it, does not seem to do much until it decides to behave itself. Quite annoying if you ask me.

    • This reply was modified 4 months, 4 weeks ago by  paula.
  • #21669
     Anne Philiben 
    Participant

    I have found that sometime pineapple juice has been helpful.  Also Robitussin and codiene most effective at relieving dry cough.

  • #21700
     Charlene Marshall 
    Keymaster

    Thanks for sharing Anne! This is a popular topic for many with IPF/ILDs, and some suggestions work for some people whereas others don’t. I believe the more information we have, the better! Thanks for sharing what works for you 🙂

  • #21731
     Joan E. Lynch 
    Participant

    I have had a nasal drip on and off for years.  Mostly on now.  I use Flonase every morning in my nose as I think I also have allergies.  I lost my taste a while back but the Flonase helped that.  I also have a problem with my voice when trying to talk it is most annoying I agree.  I started on Gabapentin a week ago and I am feeling much better with my dry cough.  Also, I find  good over the counter cough drops  help.  I think all of the problems we are having are connected to IBS.  Just need to find what works for you.

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