@lwaldschmidt
-
linda waldschmidt replied to the topic Use of Prednisone and Cellcept to Treat PF in the forum Diagnosis Information and General Questions 4 days, 7 hours ago
Cynthia, I am glad you got better news. I saw a relative of mine and she is on oxygen. She has a Phillips Simply Go that she uses when out and about. She felt like its not working for her that good,but she has other issues with her lungs than IPF. The only thing I know about the machine is she left me hold it and I can tell you it is heavier than…[Read more]
-
Jim Dawson and
linda waldschmidt are now friends 1 week, 2 days ago
-
linda waldschmidt posted a new activity comment 1 week, 3 days ago
Jamie, What dosage of atorvastatin are you on? Where you on this before for your cholesterol ? I have been on this for my cholesterol for a few years now. I’m just curious if the dosage for the atorvastatin for the inflammation from your lung disease is different than what someone takes to lower their cholesterol.
-
linda waldschmidt replied to the topic clinical trials for new meds in the forum Using Our Forums 2 weeks ago
Charlene, I under stand what you are saying. They believe my lung disease was caused from an antibiotic used for UTI infections. I was on predisone for 2 months until middle of June. Right now I’m not taking anything. I go see my doctor at KU Med in Kansas City, Ks. at the end of Sept. to see how I’m doing. If I need to be put on a med my doctor…[Read more]
-
linda waldschmidt started the topic clinical trials for new meds in the forum Using Our Forums 2 weeks, 1 day ago
Why are most of the clinical trials for new drugs to stop fibrsis for people with just ipf? Are there clinical trials being done for new meds for someone that is taking cellcept and predisone for there fibrosis? It seems that the ones you read about are always for the people taking Ofev or Esbriet.
-
Boyd Smith and
-
linda waldschmidt replied to the topic oxygen in the forum Diagnosis Information and General Questions 2 weeks, 5 days ago
I use 3l oxygen when active. When sitting or sleeping I do not need to use oxygen. At home on 3l oxygen I use continuous, and when I go somewhere I use pulse at 3l. We always enjoyed going gambling twice a year, but one of the closest places is Black Hawk, Colorado that says it is non smoking casinos, as I do not want to go to one that has…[Read more]
-
linda waldschmidt replied to the topic oxygen in the forum Diagnosis Information and General Questions 2 weeks, 5 days ago
Thanks Mark for your in put as I do not want to do anything that could irritate my lungs.
-
linda waldschmidt started the topic oxygen in the forum Diagnosis Information and General Questions 2 weeks, 5 days ago
For the people that travel a lot I have a question. When traveling to a place that has a higher elevation than from where you live ? how do you know how much higher you have to set your oxygen? Also your are not to be around anyone that smokes, so does that mean you can not go into any place where there could be some people that smoke? I did l…[Read more]
-
linda waldschmidt replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 1 month ago
I go to my local pulmonologist which is 10 miles away in hays,ks. But my main pulmomologists that I really trust and feel comfortable with is at KU Medical Center in Kansas City, Kansas which is about 4 hours from where I live.
-
linda waldschmidt replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 1 month ago
@tammy-ansley, I am from Victoria,ks. It is a small town about 3 hours west of Topeka. You are the first person that I found on this site from Kansas, that has a lung disease.
-
linda waldschmidt replied to the topic Laser Therapy Part III in the forum Pulmonary Fibrosis Awareness & Advocacy 1 month, 2 weeks ago
@drandyhall Is the cold laser therapy for any lung disease? As I am now told I have ILD and if I need any meds, I would be put on cellcept.
-
linda waldschmidt replied to the topic Homeopathy Treatment of IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago
@Steve-Dragoo, I’m confused, on one of your posts about WEI products in May you said you might try the products. Your response to my question, I take it that you have taken the WEI products. How long did you take the WEI products for amonth or several months? Did you receive positive results from taking them?
-
linda waldschmidt replied to the topic Homeopathy Treatment of IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago
@steve-dragoo, how do you get the wei products? I went to their web site and it says you have to get the products from a practioner.
-
linda waldschmidt posted an update 2 months, 2 weeks ago
Your local pulmonologists tells you when you should use your oxygen. Your COE pulmonologist says different. Has this happened to other people? It makes it confusing for the patient.
-
Hello Linda, I am sorry this has happened to you. I am sure it happens more often than you would expect from medical professionals. I hope you can get this cleared up, I am sure this is causing you some unnecessary stress.
-
-
linda waldschmidt posted a new activity comment 2 months, 2 weeks ago
@Cynthia, Did you find out yet what caused your lung disease?
-
They seem to agree it’s an autoimmune issue; now they’re trying to determine which one. I see a pulmonologist this Thursday who specializes in interstitial lung disease. I’m hoping he can answer a lot of my questions. I’m finding I really have to tell everyone about my diagnosis now because my cough has been bad and I feel it’s obvious to them…[Read more]
-
-
linda waldschmidt replied to the topic Lung Transplant Considerations. in the forum Pre/Post Lung Transplant 2 months, 3 weeks ago
What are the post op rules?
-
linda waldschmidt replied to the topic Lung Transplant Considerations. in the forum Pre/Post Lung Transplant 2 months, 3 weeks ago
I was told from a case manager that live expectancy from lung transplant is from 2-5 years. What does anyone that had a transplant know about this?
-
linda waldschmidt and
Peggy McBride are now friends 2 months, 3 weeks ago
-
linda waldschmidt posted a new activity comment 2 months, 3 weeks ago
@Keith, How do people know how long they have this disease before they are diagnosed? Can the doctors tell by the scarring on the X-rays. So many people say diagnosed in a certain year,but already had it for so many years.
- Load More
