Tom Pratt

Hi @janette   I was diagnosed with pulmonary fibrosis in May of 2015 and all that was offered to me was 20 mg Prednisone to suppress my immune system and hopefully slow the progression .  I was referred to Duke in June of 2017 and tried to get into the trial for Ofev, but was turned down.  I have recently started Ofev and have experienced none of…[Read more]

@marshaharris,  Thank you for your reply. I currently have a message in to my pneumologist asking about laser therapy.  Just  wondering, is anyone taking laser 4 treatment in the area of Greensboro or Winston Salem, NC?   I’m know that chiropractic offices in these cities have these lasers, but can’t find any mention of using them for fibr…[Read more]

You’ll have to excuse me while I try to find my way around the forum.  I’m somewhat confused as to where the latest threads are and should I be on some of them.  For instance,  I have not heard of level 4 lasers from 2 different pulmonologists that should know of any treatments.  Can that be discussed here or is that another thread?

I have been on Gabapentin for 3 – 4 months and have noticed that my cough is MUCH better. I never attributed it to the Gabapentin until I started following this forum. It has been around a long time and is inexpensive in the US. I take 600MG twice a day.

@allang

Hi Allan,
I am new to this forum, and have just started Ofev. I am on medicare with plan B supplement in the US and the copay for me is $2800 for the first month and $500 thereafter except for the “doughnut hole”. I assume it will be about $2800 or more for that time. I have decided to pull the money from my life savings to pay for it as…[Read more]

Hi, Charlene and Lindas
I am a first time poster, having joined the forum yesterday. I have just started Ofev 5 days ago and so far feel better with no side effects, but i’m waiting for the symptoms to start. I have been on Flonase for a couple of years and think it helps. I was prescribed gabapentin for neuropathy in feet about 3 months ago…[Read more]