@tomp
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janis gorsline and
Tom Pratt are now friends 3 years ago
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Tom Pratt replied to the topic What you need to know about Ofev in the forum Ofev (Nintedanib) 3 years, 2 months ago
Hi @janette I was diagnosed with pulmonary fibrosis in May of 2015 and all that was offered to me was 20 mg Prednisone to suppress my immune system and hopefully slow the progression . I was referred to Duke in June of 2017 and tried to get into the trial for Ofev, but was turned down. I have recently started Ofev and have experienced none of…[Read more]
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Tom Pratt posted an update 3 years, 2 months ago
Hi Charlene, I have been in touch with Dr. Hall, and he informed me of a office in Greensboro that offered laser therapy. I have contacted them and have a consult set up for nest week. Thank you for all you do on this site. Tom
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Tom Pratt posted an update 3 years, 2 months ago
I recently asked if anyone was currently taking laser 4 treatment in Greensboro, and @drandyhall was kind enough to steer me in the right direction. I have scheduled a consultation for next week, and will keep you informed of my progress and impressions of the treatment.
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Tom Pratt replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 3 years, 2 months ago
@marshaharris, Thank you for your reply. I currently have a message in to my pneumologist asking about laser therapy. Just wondering, is anyone taking laser 4 treatment in the area of Greensboro or Winston Salem, NC? I’m know that chiropractic offices in these cities have these lasers, but can’t find any mention of using them for fibr…[Read more]
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Tom Pratt joined the group
Research and Development 3 years, 2 months ago
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Tom Pratt replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 3 years, 2 months ago
You’ll have to excuse me while I try to find my way around the forum. I’m somewhat confused as to where the latest threads are and should I be on some of them. For instance, I have not heard of level 4 lasers from 2 different pulmonologists that should know of any treatments. Can that be discussed here or is that another thread?
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Tom Pratt replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 3 years, 2 months ago
I have been on Gabapentin for 3 – 4 months and have noticed that my cough is MUCH better. I never attributed it to the Gabapentin until I started following this forum. It has been around a long time and is inexpensive in the US. I take 600MG twice a day.
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Tom Pratt replied to the topic Ofev in the forum Canadians Living with Pulmonary Fibrosis 3 years, 2 months ago
Hi Allan,
I am new to this forum, and have just started Ofev. I am on medicare with plan B supplement in the US and the copay for me is $2800 for the first month and $500 thereafter except for the “doughnut hole”. I assume it will be about $2800 or more for that time. I have decided to pull the money from my life savings to pay for it as…[Read more] -
Tom Pratt replied to the topic Clearing Throat in the forum Diagnosis Information and General Questions 3 years, 2 months ago
Hi, Charlene and Lindas
I am a first time poster, having joined the forum yesterday. I have just started Ofev 5 days ago and so far feel better with no side effects, but i’m waiting for the symptoms to start. I have been on Flonase for a couple of years and think it helps. I was prescribed gabapentin for neuropathy in feet about 3 months ago…[Read more] -
Tom Pratt became a registered member 3 years, 3 months ago
Thanks for accepting me as a friend.