@wendyt
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Wendy Thompson replied to the topic Painful Sneezes since IPF Diagnosis. in the forum Diagnosis Information and General Questions 5 months, 2 weeks ago
I just read this although it’s 4 years old but I am now experiencing heavy painful noisy sneezing which does cause a pain in my chest. It was interesting to know it is a symptom of PFL. Having got Long COVID too with so many different symptoms. I find I need to compartmentalise each one.
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Wendy Thompson replied to the topic Question in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 11 months ago
I received an email too but haven’t followed it up. Interesting to know if it is legit.
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Wendy Thompson posted an update 1 year ago
@gunz12345 hi. I’m in England. My Doctor has diagnosed PF via Long COVID. He has offered no medication and when I told him I was worried when I read the life expectancy is 3-5 years he said that because I’m in the elderly age bracket (I’m 78) my expectations will be better because it takes longer for the scar tissue to spread the older you are. I…[Read more]
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Wendy Thompson posted a new activity comment 1 year, 1 month ago
Hi Christie, I have just tried to reply at length to your email, but it wouldn’t let me post it as I had apparently, used and ‘inappropriate’ word. Well I have reached 78 without ever having been accused of that before, so I’m obviously not too old to learn new things. So instead, I will just say Thank you very much for your reply, and I will not…[Read more]
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Hi Wendy. Ugh I’m sorry that happened. The glitch comes up every once in a while. I will get our tech wizard to investigate and see if they can recover it.
I should also add, take everything you read with a grain of salt as the internet is full of misinformation. This forum is a great resource but most of us, including me, are not doctors.
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Wendy Thompson posted a new activity comment 1 year, 1 month ago
Oh thank you so much for that.i really appreciate you taking the time to explain. Good luck to you I do hope things go well for you. Wendy x
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Wendy Thompson posted an update 1 year, 1 month ago
@sallad I was recently diagnosed with Long-Covid having never experienced Covid19 and seemingly developed after my vaccinations. My breathing wasnt too good so my Dr booked me in for a chest xray. Last week he phoned me with the results. He told me my right lung was scarred and my left one enlarged. Nothing else. I wasnt too concerned. It wasnt…[Read more]
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Hi Wendy you’ve posted a status update, which only moderators will see. If you’d like to post this as a topic in the forums for other members to respond to, select a forum from the homepage and scroll to the bottom of the page to the textbox there. “Join the Discussion” is a good place to start. “Coronavirus (COVID-19) and Pulmonary Fibrosi…[Read more]
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Hi Christie, I have just tried to reply at length to your email, but it wouldn’t let me post it as I had apparently, used and ‘inappropriate’ word. Well I have reached 78 without ever having been accused of that before, so I’m obviously not too old to learn new things. So instead, I will just say Thank you very much for your reply, and I will not…[Read more]
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Hi Wendy. Ugh I’m sorry that happened. The glitch comes up every once in a while. I will get our tech wizard to investigate and see if they can recover it.
I should also add, take everything you read with a grain of salt as the internet is full of misinformation. This forum is a great resource but most of us, including me, are not doctors.
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Wendy Thompson became a registered member 1 year, 1 month ago
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Hi Wendy,
I am so sorry to hear your news. Lung fibrosis is lung scarring – and all lung scarring is not necessarily terminal. I am glad you will be able to see your dr, After a year, (rehab and life changes) I am doing much much better. I went for a second opinion at Columbia Presbyterian Hospital in NYC (telehealth) and am under the care of…[Read more]-
Oh thank you so much for that.i really appreciate you taking the time to explain. Good luck to you I do hope things go well for you. Wendy x
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Welcome to the forum community Jenny, we’re glad you found us! I left you another, longer comment to help with your initial questions, but let me know if you need guidance in using the site. 🙂
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Hi Wendy, you’ve posted a status update, which only moderators will see. If you’d like to post this as a topic in the forums for other members to respond to, select a forum from the homepage and scroll to the bottom of the page to the textbox there. “Join the Discussion” is a good place to start. Click “home” above, or look for a list of subforu…[Read more]