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Wendy Thompson

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@wendyt

@gunz12345 hi. I’m in England. My Doctor has diagnosed PF via Long COVID. He has offered no medication and when I told him I was worried when I read the life expectancy is 3-5 years he said that because I’m in the elderly age bracket (I’m 78) my expectations will be better because it takes longer for the scar tissue to spread the older you […] View
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    Wendy Thompson replied to the topic Painful Sneezes since IPF Diagnosis. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 5 months, 2 weeks ago

    I just read this although it’s 4 years old but I am now experiencing heavy painful noisy sneezing which does cause a pain in my chest. It was interesting to know it is a symptom of PFL. Having got Long COVID too with so many different symptoms. I find I need to compartmentalise each one.

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    Wendy Thompson replied to the topic Question in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 11 months ago

    I received an email too but haven’t followed it up. Interesting to know if it is legit.

  • Profile picture of Wendy Thompson

    Wendy Thompson posted an update 1 year ago

    @gunz12345 hi. I’m in England. My Doctor has diagnosed PF via Long COVID. He has offered no medication and when I told him I was worried when I read the life expectancy is 3-5 years he said that because I’m in the elderly age bracket (I’m 78) my expectations will be better because it takes longer for the scar tissue to spread the older you are. I…[Read more]

    • Profile picture of Christie Patient
      Christie Patient replied 1 year ago

      Hi Wendy, you’ve posted a status update, which only moderators will see. If you’d like to post this as a topic in the forums for other members to respond to, select a forum from the homepage and scroll to the bottom of the page to the textbox there. “Join the Discussion” is a good place to start. Click “home” above, or look for a list of subforu…[Read more]

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    Wendy Thompson posted a new activity comment 1 year, 1 month ago

    Hi Christie, I have just tried to reply at length to your email, but it wouldn’t let me post it as I had apparently, used and ‘inappropriate’ word. Well I have reached 78 without ever having been accused of that before, so I’m obviously not too old to learn new things. So instead, I will just say Thank you very much for your reply, and I will not…[Read more]

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    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 1 month ago

      Hi Wendy. Ugh I’m sorry that happened. The glitch comes up every once in a while. I will get our tech wizard to investigate and see if they can recover it.

      I should also add, take everything you read with a grain of salt as the internet is full of misinformation. This forum is a great resource but most of us, including me, are not doctors.

  • Profile picture of Wendy Thompson

    Wendy Thompson posted a new activity comment 1 year, 1 month ago

    Oh thank you so much for that.i really appreciate you taking the time to explain. Good luck to you I do hope things go well for you. Wendy x

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    Wendy Thompson posted an update 1 year, 1 month ago

    @sallad I was recently diagnosed with Long-Covid having never experienced Covid19 and seemingly developed after my vaccinations. My breathing wasnt too good so my Dr booked me in for a chest xray. Last week he phoned me with the results. He told me my right lung was scarred and my left one enlarged. Nothing else. I wasnt too concerned. It wasnt…[Read more]

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 1 month ago

      Hi Wendy you’ve posted a status update, which only moderators will see. If you’d like to post this as a topic in the forums for other members to respond to, select a forum from the homepage and scroll to the bottom of the page to the textbox there. “Join the Discussion” is a good place to start. “Coronavirus (COVID-19) and Pulmonary Fibrosi…[Read more]

      • Profile picture of Wendy Thompson
        Wendy Thompson replied 1 year, 1 month ago

        Hi Christie, I have just tried to reply at length to your email, but it wouldn’t let me post it as I had apparently, used and ‘inappropriate’ word. Well I have reached 78 without ever having been accused of that before, so I’m obviously not too old to learn new things. So instead, I will just say Thank you very much for your reply, and I will not…[Read more]

        • Profile picture of Christie Patient
          Christie Patient replied 1 year, 1 month ago

          Hi Wendy. Ugh I’m sorry that happened. The glitch comes up every once in a while. I will get our tech wizard to investigate and see if they can recover it.

          I should also add, take everything you read with a grain of salt as the internet is full of misinformation. This forum is a great resource but most of us, including me, are not doctors.

  • Profile picture of Wendy Thompson

    Wendy Thompson became a registered member 1 year, 1 month ago

    • Profile picture of Sallad
      Sallad replied 1 year, 1 month ago

      Hi Wendy,
      I am so sorry to hear your news. Lung fibrosis is lung scarring – and all lung scarring is not necessarily terminal. I am glad you will be able to see your dr, After a year, (rehab and life changes) I am doing much much better. I went for a second opinion at Columbia Presbyterian Hospital in NYC (telehealth) and am under the care of…[Read more]

      • Profile picture of Wendy Thompson
        Wendy Thompson replied 1 year, 1 month ago

        Oh thank you so much for that.i really appreciate you taking the time to explain. Good luck to you I do hope things go well for you. Wendy x

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 1 month ago

      Welcome to the forum community Jenny, we’re glad you found us! I left you another, longer comment to help with your initial questions, but let me know if you need guidance in using the site. 🙂

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