Biography

Nickname

william-kracke

Short Bio

Active duty Navy for 9 years on nuclear submarines and 15 years Naval Reserve in Naval Intelligence.

Type of Diagnosis

IPF

Treatment / Medical Facility

Yale New Haven/ Brigham and Womens

Current medication regimen

Esbriet 801mg 3 times a day

Lung transplantation status

eligible

Supplemental Oxygen

yes

Best advice for PF symptom management

Don’t put too much faith in the life expectancy info – it is based on very old data when diagnoses were being made later in the progression of the disease and well before there were any approved treatments.  Worrying about how much time is left doesn’t do any good, we don’t control it .  Concentrate of living every day , every week, every year with joy.

Are you currently taking an anti-fibrotic medication?

yes