Hi there,

I have done 3 sesssions of Hyperbaric and found it be hugely relaxing, which in turn improves my lung function by virtue of reducing anxiety.

best regards,

 

Wes

Dear all,

HNY to you and your family.

I am so sorry, but I was travelling with work, then got covid before Christmas, so have been out of action.

I have now responded to all PM requests for the Dropbox link, if anyone else wants it, please message me again.

Any problems with access, just let me know.

best regards,

Wes

Dear all,

I have now sent you all a Dropbox link to the recording of our zoom call last week, PLEASE let me know if I have missed anybody out. PM me with your email address and I will send you the link.

I apologise, but I forgot to record at the start, so the first few minutes are missing, plus at points the internet connection on Charlie’s… Read more

Hi Amy,

Apologies, my mistake.

I am British and live in France, so didn’t connect the dots.

If you can still make it, please PM with your email address and I will send you a Zoom invite.

Best regards,

Wes

Dear all,

I am so sorry about arranging this for thanks giving, I am a UK national living in France, so it wasn’t on my radar – APOLOGIES.

I will try to record the session and send it to anyone that PM’s me with their email address.

best regards,

Wes

Hi Arthur,

please send me a pm with your email address and I will add you to the invite for this evening.

best regards,

Wes

Join us this Thursday at GMT6pm for our second PF ‘taking the bull by the horns’ Zoom call, with our guest Charlie Speller.

Charlie Speller is a highly experienced & multi-disciplined body work practitioner, bringing together a wealth of experience in healing connective scar tissue and a wide variety of other practices.

Have you wondered… Read more

Join us this Thursday at GMT6pm for our second PF ‘taking the bull by the horns’ Zoom call, with our guest Charlie Speller.

Charlie Speller is a highly experienced & multi-disciplined body work practitioner, bringing together a wealth of experience in healing connective scar tissue and a wide variety of other practices.

Have you wondered… Read more

Join us this Thursday at GMT6pm for our second PF ‘taking the bull by the horns’ Zoom call, with our guest Charlie Speller.

Charlie Speller is a highly experienced & multi-disciplined body work practitioner, bringing together a wealth of experience in healing connective scar tissue and a wide variety of other practices.

Have you wondered why… Read more

Dear all,

It seems I cannot share my email address (which I respect), but was happy to do.

Either way, the first Zoom call is now scheduled for tomorrow at GMT6pm, here is the Zoom link

https://us02web.zoom.us/j/88967710075?pwd=UXVNMjJyTEdFYVJiajRGYmRRUjVuZz09

I hope that works.

Or alternatively private message me here and I will be… Read more

Dear all,

I apologize profusely for the outage in contact, but I have been travelling for work.

I suggest we have an initial call on Thursday this week at 6pm Greenwhich mean time. Its very difficult to assess the best time as there are so many locations, so I pinned the tail on the donkey.

My email address… Read more

Hi Robert, great! What time zone are you?

Great, I am based in France, so my time zone is GMT+1, so please let me know what times work for you Vicky and Renee and we can arrange. BR, Wes

Dear all,

I have been thinking about setting up a Zoom call every two weeks (and review the regularity). On which PF sufferers and caregivers can exchange ideas and energy with regard to how people are coping with PF and how they are treating themselves.

When I was diagnosed my doctor simply stated what PF was, that I was suffering from it… Read more

Dear Nancy (and everyone else that has responded),

Thank you so much for response, it sounds very similar to my own approach to the diagnosis, which is to not let ‘it happen to me’, rather use the words of the diagnosis as fuel to make tweaks and improvements to me lifestyle.

I have been thinking about setting up a group, maybe zoom (or… Read more

Things I actively try to eat are;

Any vegetables are high in antioxidant/ anti inflammatory, for example red cabbage, broccoli, Colliflower, kale, black raspberries, pinto beans etc.
I also take a spoon fall and half of organic turmeric eat day with black pepper mixed with nigella seed (black cumin seeds). Both of these are EXTREMELY high… Read more

Dear all,

I am SO sorry for not responding sooner, but for some reason, the notifications for this group were going into my spam.

Thank you for all the responses.

The main areas that I have focussed on are;

Diet
Lifestyle/ stress levels/ exercise
Supplments/ additonal support
Therapy

In terms of diet, I have been overall very discplined… Read more

I would be interested to know what other people are doing in terms of diet, exercise and holistic treatments.

I have for some time been exploring how I can improve my diet, encourage my body to maintain healthy lung function and maintain a balanced lifestyle. I have to say, with varied success.

I would love to connect with others that are… Read more