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wesley

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@wranger

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    wesley started the topic Healing scar tissue zoom call recording in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago

    Dear all,

    HNY to you and your family.

    I am so sorry, but I was travelling with work, then got covid before Christmas, so have been out of action.

    I have now responded to all PM requests for the Dropbox link, if anyone else wants it, please message me again.

    Any problems with access, just let me know.

    best regards,

    Wes

  • Profile picture of wesley

    wesley posted a new activity comment 3 months, 4 weeks ago

    Hi Steve, can you PM me your email address please?

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  • Profile picture of wesley

    wesley replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months, 4 weeks ago

    Dear all,

    I have now sent you all a Dropbox link to the recording of our zoom call last week, PLEASE let me know if I have missed anybody out. PM me with your email address and I will send you the link.

    I apologise, but I forgot to record at the start, so the first few minutes are missing, plus at points the internet connection on Charlie’s s…[Read more]

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    wesley posted a new activity comment 4 months ago

    Hi Steve, hopefully see you tonight for the second Zoom call?

    best regards,

    Wes

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    • Profile picture of Steve Dragoo
      Steve Dragoo replied 4 months ago

      Hi Wesley – I did not see the zoom date posting. Maybe next time – Steve

    • Profile picture of Steve Dragoo
      Steve Dragoo replied 4 months ago

      PS – thank you for thinking of me the topic looked interesting. Did you record it? – stay well… Steve

  • Profile picture of wesley

    wesley replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago

    Hi Amy,

    Apologies, my mistake.

    I am British and live in France, so didn’t connect the dots.

    If you can still make it, please PM with your email address and I will send you a Zoom invite.

    Best regards,

    Wes

  • Profile picture of wesley

    wesley replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago

    Dear all,

    I am so sorry about arranging this for thanks giving, I am a UK national living in France, so it wasn’t on my radar – APOLOGIES.

    I will try to record the session and send it to anyone that PM’s me with their email address.

    best regards,

    Wes

  • Profile picture of wesley

    wesley replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago

    Hi Arthur,

    please send me a pm with your email address and I will add you to the invite for this evening.

    best regards,

    Wes

  • Profile picture of wesley

    wesley replied to the topic Diet, alternative treatments/ healing in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago

    Join us this Thursday at GMT6pm for our second PF ‘taking the bull by the horns’ Zoom call, with our guest Charlie Speller.

    Charlie Speller is a highly experienced & multi-disciplined body work practitioner, bringing together a wealth of experience in healing connective scar tissue and a wide variety of other practices.

    Have you wondered why…[Read more]

  • Profile picture of wesley

    wesley replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago

    Join us this Thursday at GMT6pm for our second PF ‘taking the bull by the horns’ Zoom call, with our guest Charlie Speller.

    Charlie Speller is a highly experienced & multi-disciplined body work practitioner, bringing together a wealth of experience in healing connective scar tissue and a wide variety of other practices.

    Have you wondered why…[Read more]

  • Profile picture of wesley

    wesley started the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months ago

    Join us this Thursday at GMT6pm for our second PF ‘taking the bull by the horns’ Zoom call, with our guest Charlie Speller.

    Charlie Speller is a highly experienced & multi-disciplined body work practitioner, bringing together a wealth of experience in healing connective scar tissue and a wide variety of other practices.

    Have you wondered why sca…[Read more]

  • Profile picture of Linda Del Degan

    Linda Del Degan and Profile picture of wesleywesley are now friends 4 months ago

  • Profile picture of wesley

    wesley replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 3 weeks ago

    Dear all,

    It seems I cannot share my email address (which I respect), but was happy to do.

    Either way, the first Zoom call is now scheduled for tomorrow at GMT6pm, here is the Zoom link

    https://us02web.zoom.us/j/88967710075?pwd=UXVNMjJyTEdFYVJiajRGYmRRUjVuZz09

    I hope that works.

    Or alternatively private message me here and I will be happy…[Read more]

  • Profile picture of wesley

    wesley replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 3 weeks ago

    Dear all,

    I apologize profusely for the outage in contact, but I have been travelling for work.

    I suggest we have an initial call on Thursday this week at 6pm Greenwhich mean time. Its very difficult to assess the best time as there are so many locations, so I pinned the tail on the donkey.

    My email address is…[Read more]

  • Profile picture of Steve Dragoo

    Steve Dragoo and Profile picture of wesleywesley are now friends 5 months, 1 week ago

  • Profile picture of wesley

    wesley replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 1 week ago

    Hi Robert, great! What time zone are you?

  • Profile picture of wesley

    wesley replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 1 week ago

    Great, I am based in France, so my time zone is GMT+1, so please let me know what times work for you Vicky and Renee and we can arrange. BR, Wes

  • Profile picture of wesley

    wesley started the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 1 week ago

    Dear all,

    I have been thinking about setting up a Zoom call every two weeks (and review the regularity). On which PF sufferers and caregivers can exchange ideas and energy with regard to how people are coping with PF and how they are treating themselves.

    When I was diagnosed my doctor simply stated what PF was, that I was suffering from it and…[Read more]

  • Profile picture of wesley

    wesley replied to the topic Diet, alternative treatments/ healing in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 2 weeks ago

    Dear Nancy (and everyone else that has responded),

    Thank you so much for response, it sounds very similar to my own approach to the diagnosis, which is to not let ‘it happen to me’, rather use the words of the diagnosis as fuel to make tweaks and improvements to me lifestyle.

    I have been thinking about setting up a group, maybe zoom (or some…[Read more]

  • Profile picture of wesley

    wesley replied to the topic Diet, alternative treatments/ healing in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 3 weeks ago

    Things I actively try to eat are;

    Any vegetables are high in antioxidant/ anti inflammatory, for example red cabbage, broccoli, Colliflower, kale, black raspberries, pinto beans etc.
    I also take a spoon fall and half of organic turmeric eat day with black pepper mixed with nigella seed (black cumin seeds). Both of these are EXTREMELY high in…[Read more]

  • Profile picture of wesley

    wesley replied to the topic Diet, alternative treatments/ healing in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 3 weeks ago

    Dear all,

    I am SO sorry for not responding sooner, but for some reason, the notifications for this group were going into my spam.

    Thank you for all the responses.

    The main areas that I have focussed on are;

    Diet
    Lifestyle/ stress levels/ exercise
    Supplments/ additonal support
    Therapy

    In terms of diet, I have been overall very discplined in…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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