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  • Warren posted an update 5 months, 2 weeks ago

    I am now in my final stage. I can not generate a second breath to even blow clear my nose nor provide push for bowl movements.

    • Warren I am sorry to hear of your difficulties. I wish I had healing powers to rid you of this disease. I do not know what to really say, only I will pray for you and you are in my thoughts. Best wishes, Mark

  • Warren posted an update 5 months, 2 weeks ago

    This is so very true in my case. The higher CO2 production the longer time to recover and increased breathing difficulty. I try to eat fresh fruit and high protein such as eggs and fish and chicken. If i eat a cookie and some ice cream i may not recover for 3 or more hours.

    • Warren, when I eat foods as you have described I feel the same way. It seems those items just want to lay around in the bottom of your stomach and make you miserable but they taste oh so good. Take care, mark.

  • Great question.  I am on high volume (4 to 7 L/min) oxygen 24/7.  I change my cannula at 4 weeks.  I would prefer to change my cannula every 1 to 2 weeks but don’t because it takes so much time an oxygen to purge the cannula of residual ethylene oxide and ethylene chlorohydrin that burn my nose for days and that would otherwise end up in my alre…[Read more]

  • Yes and yes.

    Different story in that unlike you and over a period of 8 months, I have not been able to return to work or a “normal “ life. I remain on continuous oxygen at 4 to 8 lpm. I have survived, however, the perfect storm of a triple assault of Zoster, pneumonia and upper respiratory virus.

    Anxiety remains a constant and breath taking eve…[Read more]

  • Warren posted a new activity comment 1 year, 4 months ago

    My pleasure. I will be contributing in the near future. I have been an IPF patient for 10 years and still fighting. Will share information based upon my experience.

  • Warren became a registered member 1 year, 4 months ago

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