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Elaine
@Elaine
•
Joined Jul 2022 •
Active a day ago
Biography
Name | Elaine |
Nickname | elaine |
Year of Birth | 1976 |
Gender | Female |
Location | Naples Florida |
Relationship | Patient |
Short Bio | Hello! Diagnosed in 2019 with ILD idiopathic with fibrosis- trying my best to remain positive and upbeat – patient of the Mayo Clinic and John’s Hopkins |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Mayo Clinic /John's Hopkins |
Current medication regimen | Rituxinab infusions – Cellcept 3000 – supplemental oxygen for flying and as needed and starting OFEV soon |
Lung transplantation status | to be determined |
Supplemental Oxygen | yes |
Best advice for PF symptom management | Listen to your body! The more you push the longer the bounce back |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | 3 |
Privacy Policy and Terms of Use | I agree |