Zach Adman

I’ve had for over four years and major symptoms are shortness of breath going up stairs, running or crouching. I feel fortunate in that I can do most of the sporting activities  I like to participate in but much less competitively. I’m on OFEV and have some of the typical side effects.  Hope that helps.

Does anyone know about anyone who has  IPF, getting COVID 19?  I would like to know how they are doing, if there is any special medical care they are receiving and if there is anything someone with IPF can do to make sure they get the best treatment if they do get the virus.  Be safe! Good luck.

I also try to avoid shaking hands. What I do, when I don’t want to go into a whole explanation is say I have a bit of a cold as I offer a fist bump. Most people then thank me for showing concern for their health.

I had got insurance after diagnosis. It seems that the main problem would be if you are on oxygen. If not, it did put me in a more expensive category, but did not seem to be a problem to get it.

Charlene

I normally have cereal for breakfast so started adding an egg for protein. At dinner, if I have pasta, for example, I’ll have some turkey slices afterwards as my protein.

As you can see, I’m not very imaginative in the kitchen.

Typical ones, nausea, diarrhea. I still get them periodically, but much less than before.

I’ve been on OFEV since March 2016. Started off fine then got the typical side effects.  One tip that seems to help, that was recommended on some site I was on, was to have protein in the meal you eat every time you take your OFEV. Really seems to have helped.