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Zach Adman replied to the topic Acute Exacerbation and Pneumonia in the forum Living with Pulmonary Fibrosis: 50+ 10 months, 1 week ago
I had an AE last November. I did not feel terrible before, but my wife noticed a big change in me and called my doctor. She ordered a CT scan and I was immediately admitted to the hospital. I was on a high dose of steroids and felt fine in the hospital but at the same time was being tested to get on the transplant list. When they released me from…[Read more]
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Zach Adman replied to the topic Ipf or not in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
I wish! Sounds like your in very good shape. I’m not a doctor so won’t give you any advice, other than take care of yourself and best of luck.
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Zach Adman replied to the topic 30 Days of PF: Finding Peace in the forum 30 Days of PF 1 year, 4 months ago
I was diagnosed with IPF five years ago. For the most part I skipped the anger and depression part by going straight into denial. It probably took a couple of years as the symptoms got worse to accept that what I had was real and that it would not likely end well. I then moved to the stage I believe you are in. Be thankful for every day. …[Read more]
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Zach Adman replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 10 months ago
I’ve had for over four years and major symptoms are shortness of breath going up stairs, running or crouching. I feel fortunate in that I can do most of the sporting activities I like to participate in but much less competitively. I’m on OFEV and have some of the typical side effects. Hope that helps.
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Zach Adman replied to the topic Coronavirus Lockdown in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 10 months ago
Does anyone know about anyone who has IPF, getting COVID 19? I would like to know how they are doing, if there is any special medical care they are receiving and if there is anything someone with IPF can do to make sure they get the best treatment if they do get the virus. Be safe! Good luck.
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Zach Adman replied to the topic Intentionally Avoiding Hand Shakes as a Patient with PF in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 6 months ago
I also try to avoid shaking hands. What I do, when I don’t want to go into a whole explanation is say I have a bit of a cold as I offer a fist bump. Most people then thank me for showing concern for their health.
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Zach Adman replied to the topic Insurance Availability for Patients with PF. in the forum Diagnosis Information and General Questions 4 years ago
I had got insurance after diagnosis. It seems that the main problem would be if you are on oxygen. If not, it did put me in a more expensive category, but did not seem to be a problem to get it.
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Zach Adman replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 years, 1 month ago
Charlene
I normally have cereal for breakfast so started adding an egg for protein. At dinner, if I have pasta, for example, I’ll have some turkey slices afterwards as my protein.
As you can see, I’m not very imaginative in the kitchen.
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Zach Adman replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 years, 1 month ago
Typical ones, nausea, diarrhea. I still get them periodically, but much less than before.
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Zach Adman replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 4 years, 1 month ago
I’ve been on OFEV since March 2016. Started off fine then got the typical side effects. One tip that seems to help, that was recommended on some site I was on, was to have protein in the meal you eat every time you take your OFEV. Really seems to have helped.