The Pulmonary Fibrosis Foundation (PFF) recently announced that it has acquired the Daughters of Pulmonary Fibrosis program from the Coalition for Pulmonary Fibrosis (CPF), a 501c(3) nonprofit organization based in California that serves the pulmonary fibrosis (PF) community. By assuming the administration of the Daughters of PF program and giving money raised through it back to the PF community, the Foundation will better advocate for and support caregiver needs.
“The Pulmonary Fibrosis Foundation has been inspired by the efforts of the Daughters program since its inception. We look forward to welcoming members of the Daughters program and making an even greater impact on behalf of the PF community,” said Patti Tuomey, EdD, President and CEO of the PFF, in a press release. “The Foundation will continue to cultivate the Daughters program as one of our signature programs, with an expanded focus on identifying and developing resources for the caregiver community.”
The Daughters of PF program started at CPF with the goal of expanding efforts in raising awareness on pulmonary fibrosis through grassroot events and fundraisers throughout the U.S., and providing a broader understanding of the impact this condition has on those living with the disease and their families. Now, with the support from PFF, Daughters of PF volunteers will continue their work as a part of the PFF’s signature programs, such as PFF Ambassador and PFF Support Group Leader Network.
“The Coalition has long recognized the critical role of family caregivers in the pulmonary fibrosis patient journey and the Daughters program was founded in part to educate caregivers and help raise awareness about PF,” said Mishka Michon, CEO of the CPF. “The Pulmonary Fibrosis Foundation shares our mission and vision for the Daughters program and will no doubt continue its legacy of helping people with pulmonary fibrosis and their family members find better ways to live with the disease.”
The PFF’s mission is to be a trusted resource for the PF community by raising awareness and improving education about the disease, and by funding research. The Foundation works in collaboration with an interdisciplinary group of physicians and organizations, and PF patients and caregivers, worldwide. In November, the PFF held its third biennial international conference, PFF Summit 2015: From Bench to Bedside. You can read more about the summit here.