Pulmonary Fibrosis Foundation Adds 15 Treatment Sites to Its Care Center Network

Pulmonary Fibrosis Foundation Adds 15 Treatment Sites to Its Care Center Network

The Pulmonary Fibrosis Foundation (PFF) has added 15 treatment sites to its nationwide Care Center Network (CCN) — including one each in Wisconsin and Iowa, states which previously did not have centers with recognized expertise in diagnosing and treating pulmonary fibrosis patients.

“As the leading resource for the pulmonary fibrosis community, the Pulmonary Fibrosis Foundation is committed to developing new tools and support to help ensure patients receive a swift and accurate diagnosis along with the highest quality of care,” Gregory Cosgrove, chief medical officer for the PFF, said in a press release.

“The launch of our 15 new Care Center Network sites provides crucial resources for care along with an infrastructure that facilitates research toward a cure,” he added. Their addition raises the total to 60 such centers in 30 U.S. states.

Care centers are marked by the use of a multidisciplinary approach to PF patient care. Experts in pulmonary medicine, rheumatology, radiology, pathology, and nursing specializing in interstitial lung disease comprise the care team at each recognized center, the foundation says on a dedicated webpage.

The 15 centers now part of CCN are:

Care at centers in this network also assist patients with continuing care, help in obtaining social services, joining support groups (for patients and caregivers) and in possibly participating in clinical trials and research studies.

More than 200,000 Americans are thought to live with pulmonary fibrosis in the United States, according to PFF.

The network began with the recognition of nine care centers in 2013.

 

5 comments

    • John Parks says:

      Temple University Health
      Lung Center and transplant program
      Langhorn Pa. and North Broadstreet
      Philadelphia Pa.
      And
      Harmon Lung Center
      The University of Penna. Hospital
      Perelman Center for Advanced Medicine
      3400 Civic Center Blvd
      Philadelphia, Pa.

  1. Katie Broach says:

    I am anxious to call U of Iowa to be connected to the PFF CCN regarding social services since the cost of my 2-hr a week helper has gone from $6/hr to $38.75/hr because of a reassignment of county funds. My weekly helper has been the difference between independent living and assisted living. I am private pay, not medicaid, but my current rate is based on a sliding scale of income. This change takes place at the end of June 2018 so I’ve begun a search. I was with the only agency in the area that charges on a sliding scale. of course the helpers themselves continue to be paid $10/hr.
    The funding has changed over to ‘nursing’ or investigative nursing. no idea what this involves and can’t seem to find out. I am only one of many affected by this move. I am in a low income senior apartment complex. No one here has that kind of money. If we did, we would chose to pay it directly to a helper, not an agency supporting something no one will explain.

  2. J. T. says:

    After checking and rechecking the Univ. of Colorado Anschutz Center, there is no mention on their website of any such participation in the CCN or of any mention of plans to do so.

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