Virtual Summit Will Give Voice to Patients, Stakeholders

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by Joana Carvalho |

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The European Idiopathic Pulmonary Fibrosis (IPF) and Related Disorders Federation (EU-IPFF) is welcoming patients, clinicians, researchers, industry representatives, and policymakers to register for a three-day virtual summit  regarding pulmonary fibrosis (PF) and other interstitial lung diseases (ILDs).

The European PF Patient Summit, which will be held online April 23–25, is an event designed by patients for patients. It represents an opportunity to discuss research, policy, and advocacy matters, but the program also will magnify the patient voice and experience. Patients will be able to express their opinions and experiences to stakeholders who intend to make their needs a top priority — a patient-centered approach.

The summit will include presentations, roundtable discussions and feature exhibitions from several pharmaceutical companies, including Bristol Myers Squibb, Boehringer Ingelheim, and Galapagos. A complete event schedule is available here.

Those wishing to participate in the virtual summit must fill in a registration form.

EU-IPFF invites patient organizations, healthcare professionals, and industry representatives to submit abstracts and posters focused on research or other PF-related topics to be featured at the summit.

All posters and abstracts should be free of advertisements and promotional content, and will be reviewed thoroughly before being displayed on the event’s website. Applicants must submit their posters or abstracts by email to  [email protected]. Deadline is March 15.

EU-IPFF also will provide a series of monthly webinars and presentations from experts working in the field of PF in the months leading up to the virtual patient summit in April. English Webinars will become available at the nonprofit’s website shortly after being recorded; there will be the option to watch with subtitles in different languages.

“Our experience is, that the presentations at the webinars gain a lot of interest and contribute to setting the stage for a professional and exciting Summit in a different format. Based on that we look forward to seeing many of the webinar attendees again in April,” the EU-IPFF stated on its website.

Created in 2016, the EU-IPFF is a nonprofit organization that brings together multiple patient organizations to fight for equality in patients’ access to treatment and resourceful information.