September is Pulmonary Fibrosis (PF) Awareness Month, and organizations across the globe are doing their part to bring more…
Articles by Hawken Miller
Note: This article was updated to include information from a Hopkins study published on May 5, 2021, of responses after a…
As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life…
Many diseases have their own awareness color — breast cancer is pink, muscular dystrophy is green, and AIDS is…
Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37…
A partnership that may touch many in the pulmonary fibrosis community started with a chance…
Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to…
When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its…
At 3 a.m. on July 6, 2003, Miami resident Jeffrey Goldstein got a call that would change his…
The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been…