Oxygen is necessary for sustaining human life. Most people find the concentration of oxygen in room air (about 21%) to be adequate. For patients with pulmonary fibrosis, this concentration is often inadequate, making supplemental oxygen a life-sustaining necessity. When I was diagnosed with idiopathic pulmonary fibrosis…
When I was discharged from the hospital following my bilateral lung transplant, it was the beginning of a new segment of my journey. I went into surgery on July 10, 2021, and was discharged on July 20. This was about three and a half years after my diagnosis…
About 28 or 29 hours after the completion of my bilateral lung transplant, I was extubated. I took my first breath on my own with my new lungs. It was the beginning of my road to recovery. When I was diagnosed with idiopathic pulmonary fibrosis (IPF)…
On this day three years ago, at 9:03 a.m. ET, my phone rang. Michelle Schreffler, one of the nurses at Inova’s Advanced Lung Disease Program and Lung Transplant Program, said, “We have a lung offer for you.” Schreffler made that call with two of my other nurses,…
Three years ago, my life looked very different than it does today. I was at the apex of getting my affairs in order. I was diagnosed in January 2017 with idiopathic pulmonary fibrosis (IPF), which is a chronic, progressive, and incurable lung disease. I still recall my doctor,…
“They’re here!” Much like the scenes in movies where grandparents see their grandchildren arriving, I shouted those words on Father’s Day to let my wife, Susan, know it was game time. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, there were things I hadn’t…
I spent last week childproofing my home. No, my wife, Susan, and I aren’t expecting. Our granddaughters, Abigail and Charlotte, are coming with my son Christopher for a visit to our home. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, there were no grandchildren…
I recently read a social media post from a patient who uses supplemental oxygen. They said they were unable to alert a family member in a neighboring room when the power went out, causing their oxygen to stop. Someone commented that if the patient had been on only 3 liters…
I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, at age 59, and received a bilateral lung transplant in July 2021. During a visit last week, my adult daughter Heather asked me a perplexing question: “Is the IPF gone now that you have new lungs?”…
When idiopathic pulmonary fibrosis (IPF) patients experience a worsening of symptoms, it’s often called an exacerbation. I didn’t know it at the time, but my diagnosis with IPF in January 2017 started me on an educational journey. My vocabulary was going to expand to include new…
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