My journey to a diagnosis of idiopathic pulmonary fibrosis (IPF) began in the fall of 2016, when I was 59. It all started with a persistent cough. While the cough was annoying, especially to my wife, Susan, it wasn’t limiting my day-to-day activities. After seeing a radiologist’s report, my…
From the day I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, I set out to learn everything I could about the disease. This included how to tell others about IPF, which is so named because its cause isn’t known. When a transplant isn’t a viable…
There will be times when, despite everything you cover in planning for a trip, something happens that you didn’t anticipate. I can guarantee it. I shared with you my vacation details and preparations in my Aug. 26 column, all made to ensure the entire trip would be an opportunity…
Second in a series. Read part 1 about the foundation’s work of the past 25 years. During my interview with Scott Staszak, president and CEO of the Pulmonary Fibrosis Foundation (PFF), I was struck by his passion for the foundation’s work. I asked him to share his thoughts…
First in a series. Shortly after I learned I had idiopathic pulmonary fibrosis (IPF) in January 2017, I came to rely on the Pulmonary Fibrosis Foundation (PFF) as a reliable source of information. That relationship continues today, more than four years after my bilateral lung transplant in…
“Anticipation, anticipation/ Is makin’ me late/ Is keepin’ me waitin’.” The chorus of Carly Simon’s 1971 song “Anticipation” came to mind earlier this week as my wife, Susan, and I prepare to leave for vacation. Despite booking our trip through the Czech Republic, Germany, and France almost a year…
My recent pulmonary function test (PFT) results indicated a decline in all the areas it measured. That’s not unusual for me. In the spring, my PFT numbers had declined, as well, leading to a diagnosis of pneumonia that was treated with antibiotics. This time a CT scan was ordered.
When your time here on Earth is done, what will your legacy be? We all leave one behind, intentionally or unintentionally. What do you want to be remembered for? When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, I’d already retired once from a successful…
During my journey with idiopathic pulmonary fibrosis, I’ve noticed periods of silence that affect not only patients, but also caregivers. I experienced my first significant such period about eight months after my diagnosis in January 2017. I took disability leave from my job as I was no longer able…
When I talk to patients, caregivers, or family members, almost all of them can recall the details of the pertinent diagnosis. After all, it’s a monumental life event. What each of us hears and how it’s interpreted can vary. When I was diagnosed with idiopathic pulmonary fibrosis (IPF)…
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