Modern Day Mutant – a Column by Ann Reynoso

Ann is a sociologist who previously used her degree as a college professor. Her life changed when she was diagnosed in December 2019 with a rare lung disease known as lymphocytic interstitial pneumonia, which causes pulmonary fibrosis. Ann uses oxygen 24/7 to help her breath. Ann is from a small town in Texas and lives on a small farm. She is now ready to move forward by reaching out to others who are just beginning their journey with this disease. She wants her column to show those reading that they are not alone in this struggle, that they have a voice and must courageously advocate for their health. Her motto: “Stay strong and don’t hide your illness.”

How my medical team helped calm my anxiety before a procedure

I recently underwent a bronchoscopy and bronchoalveolar lavage. While I was confident that I was under the care of competent professionals and trusted that the procedure would be conducted efficiently, I experienced a brief moment of apprehension and unease just before it. A bronchoscopy allows doctors to view your airways…

Learning to live with both sleep apnea and pulmonary fibrosis

Living with pulmonary fibrosis is already a daunting challenge, but when coupled with a sleep disorder like sleep apnea, the burden becomes even heavier. Sleep apnea, a condition in which breathing repeatedly stops and starts during sleep, can significantly impact both sleep quality and overall health. For…

Penning a ‘Dear Mom’ letter to explain my life with PF

Having the support of a loved one is a crucial aspect of the journey with chronic illness. Not having that support can make one feel alone and vulnerable. Conversely, the presence of a supportive partner, family member, or friend can help a patient build the emotional strength that is needed…

The healing power of music on my journey with pulmonary fibrosis

Music has always played a significant role in my life. From childhood choir performances to playing the trumpet in school bands, melodies have been a constant source of joy, solace, and self-expression. Despite the challenges posed by my pulmonary fibrosis (PF), music remains a trusty companion, offering a therapeutic…