After I received my single-lung transplant in December 2015, I was required to participate in a pulmonary rehabilitation program to build up my strength and lung function. I had a choice of several programs in my immediate area, and through my research, I found the best center for…
A large number of people with pulmonary fibrosis (PF) were unaware this disease even existed before they were diagnosed. I was diagnosed with idiopathic pulmonary fibrosis (IPF) in December 2014 and received a lung transplant a year later. Doctors speculated that I had been living with IPF…
Over a month ago, I returned from a three-week vacation to Europe. My wife and I were active every day of the trip. Most of our physical activity consisted of walking, but we also went swimming when we had the opportunity. We established a routine in each country we…
As a condition of being placed on a lung transplant list, I had to show that I had social support. My wife was my main caregiver, but she would need a break now and then. Fortunately, several friends offered to help with caregiving duties. However, our need for…
During the evaluation process for a lung transplant, the patient’s attention is drawn to a number of conditions. Most of these refer to the things you cannot do; you don’t hear much about what you can do. Being listed for a lung transplant is not a right, it’s a…
Even before I was officially diagnosed with idiopathic pulmonary fibrosis (IPF), I could feel my health declining and my enthusiasm to complete yardwork diminishing. I always took great pride in my meticulously landscaped yard. When I moved into my wife’s house, I immediately tore up the yard, planted new…
I recently returned from a three-week vacation in Europe. On the trip, my wife, Rebecca, and I visited Poland, Italy, Greece, and Austria. I was anxious before the holiday and worried about transporting my medications across borders. I thought, “Will I become ill? Will I be able to physically handle…
In the past week, two people have passed with whom I am familiar. One of them is well-known in the pulmonary fibrosis community; the other is a close family friend. Pulmonary Fibrosis News columnist Kim Fredrickson was a wonderful person and a passionate advocate. I read her columns and kept…
After being diagnosed with a devastating disease like idiopathic pulmonary fibrosis (IPF), life tends to come to a momentary halt. I was OK mentally after the initial diagnosis, but I then contracted respiratory syncytial virus (RSV) in January 2015. This secondary illness, caused by my IPF diagnosis,…
As an ex-college football player, I get goosebumps over the sweet smell of freshly cut grass in the fall — a sign that football season is upon us. It’s too bad that it puts me at risk for a potentially deadly disease: aspergillosis. Aspergillosis is a fungal disease caused…
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