My husband, Donnie, has been introducing our youngest daughter to the Marvel universe. Watching the movies together, I told her that she and Donnie are like Tony Stark, also known as Iron Man, because they both need a little mechanical help to keep their bodies working as well as possible.
Life Beyond Limits - a Column by Kylene Henderson
When my husband, Donnie, first became sick with pulmonary fibrosis (PF), we were unsure of the road that lay before us. His diagnosis finally came after specialized blood work and video-assisted thoracic surgery (and subsequent hospitalization). While we left the hospital with the answers we needed to begin treatment, he…
Before my husband, Donnie, was diagnosed with pulmonary fibrosis (PF) in 2022, I hadn’t thought much about the importance of keeping good medical records in the event of an emergency. We were both generally healthy and didn’t take many (if any) daily prescriptions. Today, that looks much different, and…
Years before my husband, Donnie, first began having breathing troubles, he suffered from stiff, achy muscles and exhaustion. Each night, he’d come home from work exhausted, sore, and discouraged by the pain his body was experiencing. At first, he attributed his discomfort to residual soreness from working in a high-paced…
On New Year’s Day, my daughters and I created vision boards for 2026. If you haven’t made one before, a vision board is a collage of images, quotes, and art that captures your goals and intentions for the year. We spent about an hour cutting pictures from old magazines and…
Hello! My name is Kylene Henderson, and I’m excited to be writing a new column for Pulmonary Fibrosis News called “Life Beyond Limits.” In it, I hope to share some of the challenges our family has faced and the lessons we’ve learned since my husband Donnie’s pulmonary fibrosis diagnosis…
Your PF Community
Recommended Posts
- New generic of Ofev for IPF approved by FDA, slated for ‘immediate’ launch
- Working to bring the PF and broader ILD communities together
- 4 navigation tools that guided me on my journey with IPF
- How supplemental oxygen helps my husband stay active
- Lab study IDs OG treatment for further testing, potential use in IPF
