Idiopathic pulmonary fibrosis (IPF) patients often require a multidisciplinary team to manage their care. My IPF journey has been shaped by all the medical professionals I’ve encountered along the way. I was formally diagnosed on Jan. 31, 2017, at the Inova Fairfax Hospital’s Advanced Lung Disease and Transplant…
Make Every Breath Count – a Column by Samuel Kirton
A change in seasons is underway here in Virginia, and across the mid-Atlantic. Trees that were once lush and green are now exploding with fiery red, burnt orange, and golden hues. All of those leaves have also begun to fall from the trees to the ground. Firewood is stacked and…
When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, it felt like my entire world had shrunk. My wife and caregiver, Susan, and I were suddenly alone on an island. I’m confident many feel this way after receiving a diagnosis. However, a rare, incurable disease can…
Those who follow my column know that one of my passions is cooking. It always has been. My wife, Susan, and I usually eat meals I prepare using little to no prepackaged ingredients. Dinner usually included wine for me. But what I can eat and drink changed on July…
How many times have you heard someone start a story with “before the pandemic”? It has become a common refrain for the past two-plus years. While my idiopathic pulmonary fibrosis (IPF) and a pandemic don’t make good bedfellows, they joined forces to eliminate one of our passions, travel. Before…
While working on today’s column, I considered writing about my birthday on Oct. 4. Then, a topic came to me quite unexpectedly. On Monday, Sept. 26, I had to go to the hospital. Since the pandemic began, I’ve been careful to avoid large crowds in enclosed spaces and to…
“While walking on the beach yesterday, I realized how I’m feeling about PF, in general, is like the tide. There are times like now that I’m riding the high tide, full of energy about taking on PF activities (hosting PF get-togethers, participating in fundraising walks). Then the water is gone,…
I’ve spent much of my working life conducting investigations. As a special agent for the Air Force Office of Special Investigations and in a second career providing security and investigative services under contract to the federal government, the cases all had similar objectives. Simply stated, any investigation needs to answer…
Shortly after my diagnosis of idiopathic pulmonary fibrosis (IPF) in January 2017, I spoke with my pulmonologist, Dr. Steven Nathan, about participating in research. One of the first projects I joined was the Pulmonary Fibrosis Foundation (PFF) Patient Registry. The PFF Patient Registry began following patients in 2016,…
One of the more difficult parts of my journey has been remembering those I’ve met or learned of who’ve passed away from pulmonary fibrosis (PF). There are so many. It’s why we must all move forward in pursuit of treatments and a cure. The pulmonary fibrosis community must…
