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I was diagnosed with IPF/ILD in April 2023. My DLCO has been in decline since from 77% to now 60%. Lung volume is hanging in there but slightly reduced. My Pulm has me on 100mg of OFEV. Should be here Monday and I plan to start it Wednesday as its a day off work for me.
Just thinking about it scares me. I’m in the quality of life camp vs quantity. I do not plan to go through a lung transplant even though my Pulm say’s I will be a candidate. But I will ‘try’ the OFEV in hopes I can escape most of the nasty side effects. If it proves to much, I will stop taking it. The Dr. tried to get me on JASCAYD but my insurance wouldn’t approve it as I needed to try OFEV first.
Thanks for all who have previously shared their OFEV experiences here and in other threads.