Biography

Name

Ben Robinson

Nickname

ben-robinson

Location

Maryland

Relationship

Patient

Short Bio

Engineer. PF MTVD ILD NSIP Cor Pulmonale and intermittent arrhythmia.  In reversal softening stage but with significant damage.

Treatment / Medical Facility

UMM

Current medication regimen

Prednisone Tyvaso Sotalol

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

yes

Best advice for PF symptom management

Prednisone Bursts 40 mg. 5 days every 4th week. Then 7.5 mg daily otherwise.   Workout cardio elyptical.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

How long have you or the person that you are caring for had PF?

6 years

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