Biography

Name

Adele Friedman

Nickname

adele-friedman

Gender

Female

Location

Lacey, WA

Relationship

Patient

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

OHSU, Portland, OR and Providence Pulmonology, Olympia, WA

Current medication regimen

Mycophenolate mofetil 1000 mg b.i..d. Symbicort with spacer 2 puffs b.i.d.

Lung transplantation status

to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

Get to an ILD Center of Excellence if at all possible.  Best, most specific diagnosis you can get and don’t be too quick to get a lung biopsy or even bronchoscopy. Often, non- and minimally-invasive tests, including extensive bloodwork, high resolution (not regular) CT scan, good physical exam, history, PFT and six minute walk test can obviate the need for more invasive tests.

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

7 months

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