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Augusta Adkins

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@adusty55gmail-com

Since last on I have now seen a doctor at Duke. Very happy with him. I was told by local pulmonologist that the life span was 50% of people still alive after 5 years. Not sure how that could be reliable since an my old CT showing disease started 11 years ago and now there are meds. Still feel great. I started a cough for a few weeks and for me […] View
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    Augusta Adkins replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 8 months ago

    I started taking Ofev 3 1/2 months ago with no side effects. Then 2 weeks ago started nausea, major loss of appetite, and weight loss. My doctor had said a lot of his patients don’t have side effects until after 3 months. Now I am trying ways to get pass this. I sure miss the easy path.

     

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    Augusta Adkins replied to the topic New to discussions questions about cough in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago

    Hi Tammy
    Thank you for asking My diet is  no dairy, no sugar, no red meat. I use non-dairy options. Love vegan food however do to low weight I have chicken, fish and eggs. My favorite  book out there is  “Forks over Knives”. While this is not a cure for IPF I believe in the importance of overall health.  I hope this is helpful.

     

  • Profile picture of Augusta Adkins

    Augusta Adkins replied to the topic New to discussions questions about cough in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago

    Hi Patricia

    In regards to your cough question.  My cough began March 2021 mostly in the evening. As pollen season started it got worse. First time this has happened. At one point the cough got significantly worse and type of cough changed. I went to my family doctor and was prescribed an antibiotic. This  did help reduce it and now I only have a…[Read more]

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    Augusta Adkins replied to the topic Leg muscle weakness side effect of OFEV in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago

    I have also noticed some thigh weakness and have been on Ofev 4 months. I am walking more and not out of breath so hopefully it will pass.

  • Profile picture of viola conklin

    viola conklin and Profile picture of Augusta AdkinsAugusta Adkins are now friends 2 years, 1 month ago

    • Profile picture of viola conklin
      viola conklin replied 2 years, 1 month ago

      I too have had a cough,long before I was diagnosed.Some days it is worse than others and my cardiologist stopped the lisinopril because of my complaint of cough.This was before I was actually diagnosed with IPF, so now I’m wondering how long I have actually had IPF. Like you my chest gets tight and I think it is anxiety over the cough, I take…[Read more]

  • Profile picture of Richard Conatser

    Richard Conatser and Profile picture of Augusta AdkinsAugusta Adkins are now friends 2 years, 1 month ago

  • Profile picture of Augusta Adkins

    Augusta Adkins started the topic Coughing in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 1 month ago

    My coughing started about 6 weeks ago. Trying to figure out what is normal for IPF.  My chest feels tight. Throat gets sore from coughing and evening is when is more annoying.
    I take allergy pills and cough drops. Is this the typical IPF cough??

    i

  • Profile picture of Augusta Adkins

    Augusta Adkins posted an update 2 years, 1 month ago

    Since last on I have now seen a doctor at Duke. Very happy with him.
    I was told by local pulmonologist that the life span was 50% of people still alive after 5 years. Not sure how that could be reliable since an my old CT showing disease started 11 years ago and now there are meds. Still feel great. I started a cough for a few weeks and for me…[Read more]

  • Profile picture of Augusta Adkins

    Augusta Adkins replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 2 months ago

    I was diagnosed in December 2020with a 50% life expectancy for 5 years. Very upsetting and depressing. However after seeking more info,  it seems from and old CT that this disease started in 2010. That means eleven years ago. Also more tests showing it has progressed but not that bad as yet. Will be taking meds to slow it down.  I plan on will s…[Read more]

  • Profile picture of Augusta Adkins

    Augusta Adkins replied to the topic Do Certain Foods Worsen Breathing for IPF Patients? in the forum Healthy Recipe Sharing 2 years, 2 months ago

    I am new to this diagnosis of IPF.

    I eat no dairy, red meat or sugar. Trying to cut back on inflammation and chances of cancer since sugar feeds cancer. Breathing not a big issue yet. So not sure if it helps breathing.

  • Profile picture of Augusta Adkins

    Augusta Adkins posted an update 2 years, 3 months ago

    @jgenesio I have been using the 600 mg tea extract for about 6 weeks. Anyone showing good results in their testing yet?

  • Profile picture of Augusta Adkins

    Augusta Adkins became a registered member 2 years, 4 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 4 months ago

      Hi Augusta, we are pleased to have you as a member of the pf forum forum. Welcome!

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