[Al Aceituno]

Hi Charlene,

I feel exactly the same way in the mornings now – and it is new. The only thing that has changed is that I tapered on Prednisone from 15mg a day to 11 with a goal of 10. I have steroid induced osteoporosis so trying to cut back per doctors orders and I have also noticed my bones (hip, back and right knee) ache more. Nothing has really changed with my diet or routine – I am more fatigued in general too. My breathing is more labored now – needing 8-10 lpm when moving around with an Oxydizer.

 

Al

[Al Aceituno]

Still working too and trying to figure it out. I don’t think it is the change in meds but am not sure.  I sleep with a concentrator and check my sat level in the middle of the night and it’s fine. It may just be that I am laboring more to breathe all day and just am tired? I started taking B12 and B6 to see if that helps. My hips, legs and back ache too – I attribute that to Osteoporosis so that could be a factor. I’m scheduled for an infusion of Reclast – I’ll take everything over with my doctors in two weeks. I’ll keep you posted.