Biography

Name

Alan Park

Nickname

alan-park

Year of Birth

1947

Gender

Male

Location

Hillsdale, NJ

Relationship

Patient

Short Bio

Been diagnosed with IPF about 5-6 years ago. Took Espriet for 3 miserable months so I stopped, then doctor recommended lower dosage but same results. I have stents so I am not able to take Ofev. Fortunately my symptoms are not too bad, I do get tired fairly quickly but I know my limitations. I have CT scans going back 11 years that show some form of IPF.

I’m pretty sure I got this from exposure to plutonium back when I was in the Air Force stationed at a Bomarc missile site in NJ that had an accident where 1 silo caught fire and caused a plutonium leakage. I didn’t know about this until about 6 years ago, I’m now trying to claim a disability with the VA but so far no luck.

Type of Diagnosis

IPF

Treatment / Medical Facility

Was on Espriet, not able to tolerate.

Current medication regimen

None (for IPF)

Lung transplantation status

considering later

Supplemental Oxygen

no

Best advice for PF symptom management

Unfortunately I do not have any advise. Just know your limitations.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

minimum of 11 years

Privacy Policy and Terms of Use

I agree